Private person, looking for Support, without Judgement.

[ButterflyRosesLove]

1 I'm in my 30's.

2 I have 4 children.

3 TN diagnosed me, February 22, telling me to have my Ovaries removed. Then mentioned the impossibility, due to being pregnant.

4 I was 4 months pregnant, and in denial, for fear of my baby and me possibly not making it.

5 I have a 10 year old with a Learning Disability. He is my Mother's Day Baby.

6 I have a 7 year old that excels in whatever he does. He is my June Bug Baby.

7 I have a 5 year old daughter that throws tantrums, if you don't let her help. She is my Easter Baby.

8 My other daughter was born on July 10, 2016. My tubes were cut at the same time to slow spreading.

9 All had to be C-SECTION. Th labeled me too high risk for further testing.

10 We moved to Michigan in October, 2016, as soon as we were well enough to travel.

11 We got new PCP'S in January, 2017.

12 I have 2 PCP's and a male for a Specialist. They have me going through extensive testing.

13 They say, they will remove my Ovaries, before the spreading becomes too extensive.

14 One of my PCP'S suggested a Smoking licence for the inner pain.

15 The Ovarian Specialist suggested cutting all Acidy fruit and veggies out of my diet for a year.

16...

[Fpmeehan]

You are NOT alone with this disease. I will pray for you and your family. You have a heavy load on your shoulders and you’re doing the best that you can. God loves you! Be at peace.

[Savitrima]

I completely get being private. I am always ambivalent about online things like this. You are an amazing mom. No judgement on your kids and loving them for exactly who they are. What a gift to them. I had an exceptionally rare Ovarian cancer, MMMT- Malignant Mixed Mullerian Tumor. The chemo regimen was tough, I got a license to use Medical Marijuana, I think this is what you are talking about? I use a vaporizer (don't recommend smoking, vaping is different) for the nausea and mild pain. It is a life saver. With the vaporizer I am able to stay off my nausea meds most of the time. I also use marijuana tinctures and patches. The patches work best for pain. Vaping is best for sleep and nausea. I also work with a naturopath ( she is the one that diagnosed me, my primary care never even looked at the tests from previous hospitalization prior to diagnosis!) I recently started with an Ayurvedic doctor as well. I think (no one made me God these are just my thoughts) trusting your providers is key. Finding providers that listen to your concerns and work with you as a partner in your care is pivotal. If possible seek treatment at a medical teaching facility or Cancer Specialty Center. They should have everything you need in one place. This brings you close to research, clinical trials, and "alternative" modalities that will help with treatment side effects and/or the treatment itself. Love and blessings for a healthy New Year for you and your family. xoxoxoxo

[ButterflyRosesLove in reply to Savitrima]

Thank you Savitrima. You answered most of my questions, concerning me at this moment. The Medical Marijuana was what I was referring to. I prefer getting my initial advice from someone who has been there, like you, so I know how to find the right Doctor(s) to help me. I am definitely looking into your treatment suggestions. 🎀Feel better in the 🎈🎉🎊 New Year ⛲🎇🎆!!!

[Savitrima]

Glad I could provide support. I know exactly how you feel. I continue to be moved by your devotion to your family. As long as you have them and your friends to support you will be fine. One thing I forgot to suggest was looking into setting up a community support system, but, given you're in a new place this may prove to be difficult. For example, I had my friends and even just acquaintances work together through through a website to provide me food and a few other things I needed during treatment. I got three meals a week. It made such a difference!! Not that I was hungry much, but it was one less thing my husband had to do and one less thing for me to worry about because I knew he was well fed. We used the helping hands site but there are others out there. I don't know how to get emojis so imagine I am sending happy, joyful, and loving emoji's. <3

[Jules_PPC]

I use it in edible form, I bake it in brownies and freeze them, so I always have it, I can’t smoke it, kills my throat. Eating it does take a bit longer to take affect, so I have to plan accordingly for it. I also take CBD oil in capsule form twice daily.