pancreatic MBC

[Healthplus1]

I have tried this before with no success but am trying again. Is there anyone out there that has experienced mbc to the pancreas? I have bone mets as well but it’s the pancreas doing me in. I am in so much pain and I am working with a palliative care team but the medication just makes me sleep all day. Just feel very alone in this boat. I have read that only 2%of the mbc goes to the pancreas. Any 2% out there?

[AvidBooklover]

I have not heard of anyone with this. BUT have you reached out to Sloan Kettering in NY? I have two friends being treated there for pancreatic cancer...neither started in the breast, but if anyone is on top of this, I would trust them.

[Healthplus1 in reply to AvidBooklover]

Yes and they were in agreement with the treatment plan. I think it is just a rare matastisis. But please keep your ears open.

[RedAzalea]

Hi there, 1st of all, I am sorry. MBC is enough for anyone. I have a pancreatic cyst that they monitor every 6 months. It was discovered incidentally. I am told they don't think it's connected, but I would ask have they biopsied it? to confirm that it's BC cells in the Pancreatic tumor?

[RedAzalea in reply to RedAzalea]

and I am treated at MSK and and can recommend the Pancreatic surgeon I see

[Healthplus1 in reply to RedAzalea]

Yes thank you I will certainly take the referral information. I went to MSK for a second opinion when first diagnosed with the pancreatic lesions, to see if they were in agreement with the plan of radiation and simultaneous chemo and they were. That was 6 months ago.

[Healthplus1 in reply to RedAzalea]

Yes I had a biopsy and it is breast cancer. 2 stents placed in my abdomen and I had a nerve block. I get weekly taxol infusions but all palliative care does is give me oxycodone and gabapentin dir the never ending pain that makes me sleep. I’m not depressed but certainly disappointed there is not a better solution.

[Suite1000]

Mine is not cancer, but I have a huge mass on my pancreas. Was discovered at my de novo diagnosis 2 years ago. At first the doctors were pretty freaked out, but it has remained stable.

Not the same as you though, hope you get some good advice.

[Healthplus1 in reply to Suite1000]

Thank you so much for your response. Are you in any pain?

[Suite1000 in reply to Healthplus1]

no pain. I don't even know it's there. Oncologist and radiologist have stopped commenting. I did go to see a pancreatic dr and he seemed unconcerned as well.

[Healthplus1]

something to be thankful for!