MBC inside the bones

I was diagnosed MBC 6 months ago. I had a terrible pain in my back and neck but we didn't really worry about it because we thought it was due to my mutiple sclerosis.

MS is really "quiet" and I can walk normally but now i have to deal with the MBC which is in the bones only. My onc told me it is a rare form because it is located not on the bone but inside it.

I am French and i compare the treatments and it seems we all have the sam protocol.

[jersey-jazz]

Dear Fight72--- My heart goes out to you. This may be such a terrifying time for you with all the unknowns and the sudden prospect of perhaps an altered future. We are all glad you are here so we can put our virtual arms around you and let you know that it really is not so terrible. Once you know the full extent of the disease and the treatment, you will probably feel better than you do now and will settle in to what can be thought as a chronic illness. Please keep us all informed of your journey as we do ours.We care for you.

XXX OOO

[Shafight in reply to jersey-jazz]

I too had terrible back pain. I thought something was wrong with my back. MRI showed extensive Mets to bones. I’m still alive 15 mo later. Soon after I started Ibrance and fulvesant , all pain went away. Let me know how you’re doing!

[Shafight in reply to jersey-jazz]

My cancer was in bone marrow

[PJBinMI]

By "inside" the bones, does your onc mean in the marrow rather than the bone itself? In general, those of us with bone mets only, can do well for a long time. I was diagnosed with bone mets only in 2004 and have done pretty well, only on 3rd treatment since beginning. The bone strengthening-cancer cell limiting drugs like Zometa and Xgeva have really been like "miracle" drugs for those of us with bone mets. I hope you will do well for a long long time!

[8576]

You have so much to deal with but know that we are here for you and will answer your questions if we can. I have mets inside my left hip. Not in the hip but inoperable.

Cheers, June S.

[Mary115]

I am so impressed with the people here, and I hope you also find the support you need.. Makes the days easier by far..