My dear fellow warriors, I am giving you a update on myself. You send me all kinds of encouragement and prayers when I needed it, many thank yous.
The pet scan showed that my tumors has increased some in size, not alot but some. Oncologist said that shows that the cancer is resisting the treatment I am on, is not as effective as hoped, suggested another treatment. She gave me two options; a chemo that I have never tried (sorry don't remember the name, 5% of population is heart affected ) or going back on Taxol. Taxol was effective but it started to give me neuropathy. I decided to go back on Taxol, see if it works. I have been on almost every kind of chemo there is available. Lately I have started to struggle with some depression, asked for a anti-depression meds. Just started on low dosage of zoloft. My energy is especially low lately but I know I need to stay active. And I need to be positive in spite of this sucky disease. Think of a few things to be thankful for every day, it does help. Prayers up for me please, I will also pray for you all. I am thankful for this group, gives me a change to vent. People in general try to understand but they don't really.
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SusieIM
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Susie, so sorry you are going through this. You are not alone.wishing and praying for a good treatment outcome for you as well as comfort, peace and love.
I’m very sorry that your scans show a little progression.
On a positive though, it’s because of being monitored in this way that your oncology team can quickly change tactics and get you on to an alternative option asap.
As you know from experience with this tricky bugger there’s always going to be a plan B, C, D…..etc.
Try to stay positive, it’s good that you’ve recognised your depression and have been prescribed some medication. I hope this helps and that your next therapy kicks butt!
I know it’s cold now, but it’s good to try and get out if you can. Studies show that it’s extremely therapeutic to get out into nature…. A walk in the park, or just sitting on a bench under a tree can help to lift our spirits.
I am really sorry to hear this and hope you find a suitable treatment to settle into for a while without too many side effects. I'm sending love and energy. Carolyn x
Hi SusieSo sorry you are going through such a down time. To have to decide between 2 chemos isn’t a pleasurable choice is it? You have decided though and you can start on the treatment soon.
I hope the neuropathy keeps at bay. Have you considered Intermittent Fasting during chemo? It’s not for everyone but it can reduce side effects. Might be worth a try?!
You know we are all with you and sending you our best wishes
HiI feel you on the progression. Mine in in my liver which is always a pain when it goes to the organs.
I am getting tests done for a clinical trial which to be having a hickup due to something that happened to my heart during my masectomy. I was on ibrance/letrozole because of progression in my liver I am off ibrance still on letrozole. I will be demanding Monday. I understand Drs trying to stabilize but they need to start me on something else. I can't keep waiting for them to figure things out about this trial.
Some days we don't feel positive and have to rally the positive emotions troops to keep moving through this.
I hope next treatment gives you stability. It is amazing to me that some of us have the same type of breast cancer yets drugs work for some and not the others🤦♀️. It's frustrating
So sorry to hear that your results are not what you hoped for. Also happy that you got something for your mental health. It makes a world of difference. Hope your new treatment will be successful. This is a tough journey we are on and it is. It always easy to stay positive. We do our best💕 Theresa
On a 12-week course of Taxol once a week, My neuropathy didn't start until i was more than halfway through. So I toughed it out, and a year and a half later, I'm still dealing with the neuropathy. If you want to know my "bag of tricks' for dealing with it, I'll be glad to share.
The good news is, that after almost 2 years of Perjeta and Herceptin, (started when I started the Taxol), I have no progression and no new mets.
I would love to see the bag of tricks, too. I have neuropathy from dropped foot. I use Voltaren cream and my pain doctor said Cymbalta works and on nights when it is bad, I take that.
Hello Susie, I am so glad you reached out to your doctor about your sadness and got on an anti-depressant. About a year after I was diagnosed de novo I started taking a low dose anti-depressant. That was four years ago, so I am five years out from diagnosis. The medicine really helps. I think sometimes the hardest thing about this disease is the loneliness it engenders. I only know one other person in my life that has a similar diagnosis That’s why it is so valuable to have all of you as supporters. You get it. No one has to explain anything. It is very comforting not to be alone. But it is sad, too. Too many great people with a sucky disease. I will pray for you, for a new effective treatment and for the Zoloft to help you keep things in perspective. Be patient, though. As Sandra said it can take up to six weeks to feel better and you may have some side effects as the medicine begins to work. Happily those ease fairly quickly. Also, you may have to try more than one brand to find the right one for you. I ended up on citalopram which has been around forever. Prayers for you!🙏🙏🙏 Kate from Alabama
That was very brave of you to ask for help with your mental health . This disease and life in general messes with one’s head and for me personally January & February are especially tough I hope the taxol is effective for you and the side effects are few.
Sister/warrior/thriver/over-comer I continue to lift you, and your family up in prayer. I pray for NED, Stability, no progression, and for whole body healing Amen.😇 I know it is easier said than done, but keep the faith, stay strong, continue to pray to, and praise GOD for all blessings seen, and unseen.😇 I send you, and your family many, many virtual hugs.😊
I was misdiagnosed in 2006 when I had a visible lump in my breast. I was told , and sent a letter that said it was benign. A year went by I then had another visible lump, this one was under my arm. I was correctly diagnosed in 2007 a year later with Triple negative metastatic breast cancer. 10 out of 12 lymph nodes were affected by cancer . After aggressive painful chemo, and black burns from radiation I was asking GOD to just let me go to heaven . The 38 year experienced Oncologist I saw then said he bought me some time, and that I would not live to see 2008 . He told me to go on a cruise, and do all the things I wanted to do in the little time I had left. He also told me to make all important decisions for my arrangements . Well as you can see (DR. FATHER GOD) has given me 14 years with NED. My recent scans, and blood work are still NED . I am thanking our LORD that he didn't answer my prayer in desperation to take me home during that most trying health challenge. I praise our FATHER/GOD . Sister/warrior/thriver, and yesssss overcomer we as believers have to stand in the gap for one another, and others who want intercessory prayer. Iron sharpens iron XoXoXo😇
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I was correctly diagnosed in 2007 a year later with Triple negative metastatic breast cancer. 10 out of 12 lymph nodes were affected by cancer 
. He told me to go on a cruise, and do all the things I wanted to do in the little time I had left. He also told me to make all important decisions for my arrangements 
. I am thanking our LORD that he didn't answer my prayer in desperation to take me home during that most trying health challenge. I praise our FATHER/GOD 
Petscan results not great. 
Capectabine/Xeloda
Survivor guilt 
How to stop weight loss?
Could you give me some idea of what I will go through please?
