Hi wonderful people,
I have a progression to bones (wide spread) and liver. I am taking Xeloda now. My oncologist said that if the spread stops it’s possible to go back on the treatment I had been before. Can you share your experience with me. Also if someone was on IV chemo and then went back on pills please share.
Thank you ,
Marina
My onco said the same thing. I have been on IV taxol and xgeva shots since March. I agreed to 3 months then agreed to 6 months but am still on taxol. To date I have found it easier to deal with than oral meds. Now I am breathy and will have scans on Monday. I am assuming that pleural fluid has increased but it could always be my heart--which I have to date not had a problem with but these meds are rough on body, etc. So, I will see. In some respects I hope it is a bit more fluid and I have it drained rather than deal with a possible heart valve issue and to think about surgery. So, I am trying not to go there--only a two more days for scans. Plus my onco wants to put me abema instead of Ibrance and then there are different issues to deal with. UGH!
Hi,Thank you very much for sharing.
What is abema? Also I would like to ask you why were you without meds for one year? You shared it previously. What was the reason? Hope everything goes well with your scan and you will be able to go back on pills. We all should hang in until ErSO comes around. I know you follow it as well.
Best,
Marina
Abema is what the docs call Verzenio for short. I was NED so wasn't on it for almost a year.
Hi Bonnie,How was your scan? Did the doctor put you back on pills?
I have my appointment today and I am very nervous. Last time my bloodwork was not good.
Let’s hope ErSO comes around soon
Best,
Marina
Well no pill s as yet. My scans, bone and CT were stable and slightly improved. But my tumor markers have shot up more and they are trying to get me scheduled for an MRI of brain before my Monday taxol infusion. This is depressing to say the least.
Hi Bonnie,Thank you for all your replies. I did not know that you could stay with no meds. I am sorry for your markers but sometimes they go up for no reason. I have read many posts by women sharing about markers fluctuating. I feel for you. I am also going crazy when my markers fluctuate. I hope everything will be fine Good luck with your MRI ! We al have to hang in until the ErSO comes around.
Best,
Marina
Hi Sandra,No I actually don't really have any concerning brain symptoms and yes, I agree, they just need to check it off the list. So, I am trying to keep this in mind to keep myself calm. I am on a waiting hold now with hospital to see if any update getting me into
No luck on appt. today but have to laugh that I talked to radiology at hospital three times today and each time was another onco staff screw up . So, I will call tomorrow at 8:30 to see about a cancellation. But, I am comforted tonight as I do feel really good when not crazed emotionally. I will see what it is first without going to crazy before I know. Thanks for responses.
Great info! Gives me hope. Thanks.
Thanks for asking. Yes, I did get it scheduled quickly and it was this past Saturday. I read the report myself (which I can effectively do pretty well. So bottom line no cancer in my brain that they could see. I went ahead with my infusion today as I knew it would be okay. I am disappointed in my team that no one would look over the weekend. Really, after scaring me to death. Oh well, good thing that I can navigate this stuff pretty well. So treatment remains the same for now.
Hi Bonnie,I am very happy for you. Such a relief.
Good luck with your treatment.
Marina
Actually, the docs did want the MRI within 4 days before my treatment which was this morning. So, makes little sense to me that the radiologist is looking at the MRI, interpreting it and not finishing while he is there. Of course ER patients are another story. But that was not the case--I got lucky. And yes, I am tremendously relieved, my scans last week showed no progression and some healing and the MRI suggests that one tumor near my skull was treated--but, no, I did not have radiation--so that is interesting and good if the case. I feel free for the first time in quite a while.
Hi Marina,Just remembered this post when reading this article.
pubmed.ncbi.nlm.nih.gov/352...
I think it is worth talking over with your onc.
Lovexxx
Lucie
Hi Lucie Thank you very much for your comment and suggestions Best,
Marina
What is role of hormonal therapy drug when taken with targeted therapy, eg Piqray or Ibrance?
Invasive Breast Cancer her 2 P+ E+1 lymph node Metastatic spread after chemo & Mastectomy 
Back after several months off being off due to NY pandemic - targeted radiation of lower spine five days for 4-7 weeks?
Metastatic spread to skull
Did anyone on Verzenio receive a ‘welcome kit’??
