So dear ladies, I was rushed into hospital today as my bloods were showing signs of clotting.
I’ve got to inject a blood thinner until my CTScan either tomorrow or Saturday to see where they are. I also have to have an X-ray on my arm as my GP did think I had a clot there.
It could be the Cancer itself or the medication apparently. So, not very happy right now. My blood pressure was high and my pulse higher than it should be.
The hospital have let me home. They weren’t unduly concerned about my swollen ankles.
Oh boy, and so the saga goes on. I will update tomorrow or over the weekend. I’m expecting a phone call from my Oncologist tomorrow. Personally I think my GP has understood what’s wrong more than my Oncologist.
Injecting is easy but it’s another thing I have to do. If it continues I will have a tablet form of blood thinner.
I just want my Cancer treatment to be ok but so far I’m concerned I will have to change it again.
Know that I'm praying for you .. Stay strong !!!! Julia Adele
Hi Sandra, the CT Dept closes at 17.00 and it was 17.55 when I was there. So hence the delay. They just do not keep patients in at the moment due to Covid. I think that’s wise. I’m sure there must be a CT scanning facility during the night. What happens to road crash victims when they need a scan?They have put me on Enoxaparin sodium 8000 iu. I’m ok with injecting. The nurse watched me administer the first dose.
I really do feel nervous about it all at the moment. It’s nearly 3.00 a.m. here and I can’t sleep. I’ve taken an antihistamine and I’m waiting for it to kick in and make me sleepy. Shake me and I will rattle with all the drugs inside me.
I was sorry to hear you had a similar situation but also pleased it was resolved and quickly. Reading your comments reassured me more.
The hospital was so busy with medically acute patients (think that’s right) that I had to wait longer than expected but not as long as some patients there. It’s been so hot here I think some elderly patients with breathing issues have been affected by it.
I will let you know how I get on. I didn’t feel very well this morning. I had my bloods drawn at a Health Clinic and they immediately phoned my GP once the results were back and told her to get me into hospital straight away. I also had to go to another Health Centre for the X-ray on my arm. All in all 3 different places today. One end of the City to the other.
Wow does that sound exhausting you poor thing. Why can't they just get it all in one place instead of making already physically and emotionally stressed people cross the planet to get help. That's horrible. And hardly HEALTH care
Cheryl, as you know I have recently started on the same treatment. I am so sorry things have developed in the way they have for you. Hopefully things will settle. I think we all need a degree in medicine to be able to keep up on what’s going on with our bodies!!I smiled at the thought of you rattling with having taken so many pills! At least you still have your sense of humour. I hope you managed to get some sleep 😴
I have on my horrid forest green pressure socks (can’t recall the exact name). I am heading to the airport to take the flight home for my appointments, scans, injections etc. on Monday and Tuesday.
Hi Vicki, firstly safe journey in your lovely green socks. I’m sure they are not very flattering but hey ho, as long as they do the job.I’m relieved to say the CT Scan is early tomorrow thank goodness. I managed the injection well this morning. I have to do it twice a day.
It’s great that you seem to be ok on this combination of meds. I do have hypertension although controlled and I take Ramipril so I’m not sure if this makes a difference. It specifically mentions Ramipril in the leaflet I get with the meds. I have read what Sandra has written previously and mention it all to my Oncologist when he calls me today. I hate phone calls. I would much rather face to face even if a mask does prohibit the projection of what he is saying to me. I just do not feel these drugs are balancing up with other meds I am on. I agree with some of the ladies here that maybe a lower dose could help.
I hope the scan went well/will go well. (I’m loosing track of time).And I hope that you got some answers from your oncology appointment. 🤞
You know your body best so trust your instincts. 💪🏻
My energy levels are starting to tank. It could be the meds or could be the travel. I’ll have a better idea of how things are going after my appointments. Will let you know.🤞
I’ve balanced the few next days between hospital appointments and catching up with friends who are also back from abroad. PCR test is done so I’m now off to have fun 🤩
Wow, Cheryl, so scary! I'm glad you caught it and are able to stabilize with the injections until you get it fully sorted....Wishing you the best for your scan and treatment...
Hi CherylOh you poor love. At least you are back home and they are aware of you now. I was very worried when you were in that stage of limbo before.
You are going to be very tired with all that lack of sleep.
I am glad you had a CT scan as the VQ scan is not a very good indicator of clots - it only shows a percentage likelihood of one - I think that is right. Am I Sandra? We are very slow to do them in this country.
We are in a very bad state with emergencies and services are closing down again. Ambulances are only responding to cardiac arrests and patients that fall are having to wait 8-12 hours, which can have serious complications for them.
Know that we are all thinking of you. Keep strong and think of lovely flowers
So very sorry for the tremendous stress and anxiety this situation is causing. You are in my prayers for a swift resolution to this issue. 🙏🏻🙏🏻💗💗
I’ve been on blood thinners since clots were discovered when I was first diagnosed with MBC nearly 4 years ago. Currently twice daily Eliquis. This is such a great med because no need for constant finger jabs to check blood.
GOD BLESS YOU and shine His light on you every minute!! This whole community holds you close!
Hi, Sandra,Your clot history sounds exactly like mine. I’ve now been on blood thinners for nearly four years. Small price to pay to reduce risk of embolism.
So lucky for all of us that you are always ready with time for explanations and comfort. God bless you, dear one! 🙏🏻🙏🏻
Sending prayers and hugs. So sorry you are going through this new challenge.
Sandra you have such a brilliant way of explaining things. You took me right back to my University days then (fond memories). I haven’t worked in respiratory for a while so I am very rusty, and the only VQ scans I see people have now is for DVTs, so that’s where I think they are less accurate.I am so sorry for your beautiful country and your personal situation. Please keep yourself safe. Children aged 12-15 are going to have a vaccine now in October which I am thankful for. However I am sure there will be a low uptake for this as well. My Son will be first in the cue I can tell you that.
I also hope that if we do catch the virus the vaccines will help us fight it and not become too ill 🤞
So sorry to hear all that you have been going through. Thankfully you’ve already been given lots of very helpful advice from the knowledgeable ladies on this forum.
Covid times has unfortunately also caused you more delays & stress.
I’m hoping for a flu jab & a 3rd Covid booster jab in the next couple of months 🤞 although the flu jabs appear in very short supply here in the UK at the moment.
Hello everyone. And Cheryl. What a time you’re having. I’m so sorry to hear of it. I’m not sure if you are saying the think the Denocumab is causing this for you. Is that what you meant? I don’t remember the other cancer drugs you are on. But I can sure understand when you say shake and you’ll rattle. Me too. I and sending you positive thoughts. And to everyone. Here in Melbourne we are on our 7th or 8th lockdown due to Covid, (Delta) going apeshit. It’s very scary. And last night I couldn’t sleep at all due to a shocking pacing in my lower rib area. I do have Cancers blooms in my ribs. Lots of them. But I don’t think I have one where the pain was. So of course I’m scared it may be my spleen or something. But I sure as hell don’t want to end up in hospital here either. There are about 56 cases in ICU at present. And they are shuffling people around to different hospitals so all the Covid cases aren’t in the only the main hospitals.
Oh dear. It’s like a nightmare isn’t it?
Take care everyone.
Even all of us who are double vaccinated need to be careful I guess.
Hi lovely, my Son and his family live in Brisbane and so far the cases have been low. We also have very close friends live in Melbourne. They are taking care. I just freak when I go into our main hospital. I don’t look to closely at the dirt and muck around. It’s a really old hospital with a new one being built next door. They completed the Cancer Centre last June. It’s lovely and away from the main hospital. Due to my condition though I had to go to the old place.As well as being on Denosumab I was changed to Everolimus and Exemestane due to small liver mets showing in my last CT scan. Today completed the final investigations with no clots in the lungs or arm. So, it has to be the Chemotherapy drug. I see the Oncologist Friday. I guess it will be another type of chemo I will have to go on.
All in all it’s just a worry for us all. Every ache and pain we have brings new anxiety. Something I should be used to after 2.6 years. The Doctor from the hospital called to say the ultrasound on the arm is negative. Thank goodness.
Take care and have a chat with your Oncologist if you have more pain.
I'm so sorry for what you're going through. We havent found my sweet spot yet with Ibrance. It is a crap shoot isn't it. We're all so different. It is really unnerving. May God bless you in every way
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Everolimus and Exemestane 
Any experience with Exemestane or Everolimus?
Ibrance and blood clots 
