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SHARE Metastatic Breast Cancer

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Hello! I am new to this group and this is my first post. I'm still figuring out how to maneuver around and see what I need to. I am 45 years old. Married with 2 boys, 8 and 14. My returning diagnosis of metastatic breast cancer was on 8-21-19. I had 10 cycles of Abraxane and Carbo IV chemo which helped tremendously in reducing the cancer that had returned on my liver, spine, and ribs. On June 1st of 2020 I began Talzenna. I had to stop on 8-17-20 due to it not working on my liver lesions. I am to begin Xeloda as soon as I get it. 14 days on, 7 off. I'm on a low of this ride due to the Talzenna not working and the death of a close friend and cancer brother. My mind is trying to kick my butt right now, telling me I'm not going to make it very long. I was told about this group and am looking forward to the support.

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SunshineCowgirl
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7 Replies

Hi!

Welcome to this site. I hope that you will find us all supportive and helpful on this site.

I hope that everything goes well as you start xeloda. I’m not on that myself, but there are many helpful posts about it. If you look for a certain topic in the search bar that will bring up topics of interest.

If you want to talk, please free free to reach out to me. None of us should feel alone with this disease.

Take care,

Sophie 💐

8576 profile image
8576

Welcome. You have come to a very good place. The kindness, information and support hear is phenomenal.

Sorry about your progression but don't worry your doctor will come up with something else to combat the disease. Cancer is a roller coaster ride. I am sure you will find some help with that on this site. Judging by your title you will be ok.

Cheers, June S.

Hi and welcome.

As Sophie says none of us should be alone on this journey.

I have bone and lung mets. I was diagnosed 2018 after being in remission from breast cancer stage 1 in 2013. I had the all clear after 5 years then within months was diagnosed with Stage4 in almost all bones.

I take Letrozole, Ibrance and have Denosumab bone strengthening injection every four weeks.

I hope your drug regime suits you perfectly but honestly, there’s so many to try if one doesn’t work I’m sure another will.

Take care and keep posting. The ladies on here are wonderful.

Best wishes

Cheryl

Good morning Sunshine Cowgirl :) how I love that name.

Welcome to this page where you'll find great support. Yes, we can all identify with the mind thing!!

There are so many treatments to find out which one will be best suited to treat your specific tumor. You'll find others here on Xeloda. I am on Ibrance and Letrozole, which may be changed to a different treatment in December.

I'm hoping and praying for great results on Xeloda! Hugs

Anja

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mariootsi

Welcome. We are here for you. Sounds like you have had a tough time lately.

You will find great support and love on this site.

I pray better days are coming your way.

Love,

Marianne

Lulusue profile image
Lulusue

I hope you start to feel a bit better soon. I was lucky to find the first lot of treatment s , lbrance (125mgs) and Anastrozol, suited me and has stopped the progression for 20 months so far. There are so many treatments and combinations- it’s just finding one that suits you. It can be a roller coaster of emotions, symptoms and feelings until you find the right balance. Much love to you.xxx

Oliveoyle profile image
Oliveoyle

Hi dear one, there are multiple drugs in your post that I don’t recognize so I will just say that I began this journey 6 years and 4 months ago believing I was stage “3c” HR+ HER2- i had taxotere cytoxin 6 weeks of radiation double mastectomy 19 lymph nodes removed—and that was in the first 8 months. A couple of years ago we had to acknowledge stage 4 per bone marrow biopsy. Since then Xeloda Zometa, Faslodex, estrogen supressors galore and more that I’ve forgotten (chemo brain is real!) and finally this year my mutation NTRK1 was found. I am on Vitrakvi since May and my tumor markers dropped from 6800 to 1300 and I look forward to scans within a month or so. Life is different—but I am here! Never give up, never surrender❤️

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