SHARE Metastatic Breast Cancer
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Hello! I'm Linda from Seattle; diagnosed with Stage IV with bone mets after 17 years. My original cancer was stage 1; very small tumor in right breast; I opted for double mastectomy and had no sign of cancer in sentinel nodes on both sides, nor in remaining breast tissue following removal of both breasts. I had no follow-up treatment, due to "perceived" nominal risk at time.

But, as we all know, cancer is quite sneaky; it can lay dormant for years. I discovered a lump in my right arm pit in November and the cancer, unfortunately, had spread to spine. I have just completed 10 radiation treatments to spine which eventually led to total exhaustion and a case of esophagitis which has begun to dissipate a week or so after last rad treatment. Most helpful: Prilosec for major heartburn.

I am finding so many posts so helpful--especially those recommending supplements for a variety of side effects. Thanks so much to everyone. God bless every woman with advanced breast cancer and may all of us find hope in continued research!

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Your post is interesting. Cancer is sneaky. I was not supposed to get a reoccurrence. Same day I was told I was 99 per cent cancer Free I was called back with elevated tumor markers and then diagnosed shortly after with stage 4. None of us can be too self confident.

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Totally agree! One highly regarded oncologist at Seattle Cancer Care Alliance is suggesting possibility that no woman who has ever been diagnosed with BC is "cured." It is a lifelong practice of continual self-monitoring and never taking five years or ten years or twenty years for granted. Hope you are doing well, Tap321!

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Wow. I couldn’t agree more!

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It is amazing to think after so long this horrible disease returned and I can only imagine your shock. I too was shocked when I learned I was re- diagnosed with bone Mets! Stay hopeful and every day there r new discoveries! Never lose hope!!!!!

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Thanks for your encouragement, Epinto! Prayers to you!

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Welcome Seattle Mom! I lived in Seattle for 20 years, now I’m retired and live in Sequim. I too was shocked by my Stage 4 diagnosis. I had Stage 1 in 2008 and simply forgot about cancer for 5 years until severe backaches led to a Stage 4 diagnosis. The cancer has remained in my bones so I’m thankful for that! Take care and welcome again!

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Thank you, Shelly! Blessings!

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Welcome Seattle Mom!

I too am in the Seattle area-I am treated at the Swedish Cancer Center in Edmonds and am so confident in my providers. I too had recurrence after 17 years of cancer free life. Stage 2B-mastectomy/Radiation/Tamoxafin for 5 years. Now bone mets to skull, mandible, spine and ribs. Had radiation to mandible and spine/ribs and am on Ibrance and Exemestane. Did great with Ibrance and Femara for a year and a half and now switched to Exemestane because of the side effects of the Frmara(extreme joint pain and neuropathy). Stay strong 💪 and you will do great with your new normal. Attitude is Everything 💕. And most of all Faith in the Lord that what will Be will be. Prayers to you 🙏🙏🙏

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Hi, Becky! Thanks for your encouraging words! My biggest side effect from spine radiation (aside from extreme exhaustion) was esophagitis that made it difficult/painful to swallow, as I guess my esophagus was an innocent bystander to the radiation. That lasted about two weeks and now I am nearly back to eating normally again. Thank God for even small favors! So far, I am doing okay on the letrazole/Ibrance combo, but great to know there are alternatives if side effects become more difficult! Prayers to you as well!

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Oh my!! I forget that part with the esophagus 😫. That was horrible!! Ended up having emergency surgery one night after getting a small spaghetti noodle piece stuck in it. Would come up or go down and the hymlick sure wasn’t an option. Great diet plan huh?

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What a shock for you! I was stage 0 in the left which required a mastectomy due to the fact that it was multi focal. Seven years later I was stage four on the right with Mets to the rib and hip. That was 1999...and I am still here obviously. So keep fighting and don’t let it take over your life.

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Hello Kathleen, You had a shock too!! Did you also do chemotherapy after your mastectomy?

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Yes, I had 6 tx of Adriamycin & Cytoxin. I have had radiation on 3 different occasions. Then I was on Xeloda (oral chemo ) for 6 years. Historically I have been on Tomoxifen, Adriamycin, and currently on Faslodex; all hormonal therapy!

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Thanks for your positive message, Kathleen! What has been your treatment message. Your reaching out so very much appreciated! Linda

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I meant "treatment protocol."

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