Hi
My Oncologist has just rang me with my CT scan results.
There is a new suspicious area in my liver that they want to look into more detail with an MRI scan.
There is also a lymph node under my arm that they would like to biopsy and look at.
My bones are looking fine.
In the meantime, I will continue on palbociclib & letrozole. They will also restart the Denosumab injection.
I’m very concerned but no amount of worrying changes anything does it?
Love Jo xx
Hi Jo,
I won't tell you not to worry, because it is natural to do so! How can we not worry? I hope the MRI on your liver shows that it is nothing serious. My liver also looked suspicious back in 2018, so I had an MRI done. The MRI was clear, but then all subsequent CT scans reported that I had tumours in my liver. Fast forward nearly two years and I found out that it was haemangiomas, which are benign blood vessels. Maybe that is what is showing up on your liver too. I bet you are glad that your denosumab injection will start back up again soon. That's good news!
Take care,
Sophie
Hi Sophie
Thanks for your reply.
I hope you are right.....🤞
Incidentally your bike looks great. I considered getting one but get a fair amount of exercise walking my dog, Teddy. 🐶
I will keep you posted and thanks again for caring. I’m so very grateful we have this forum!
Love Jo x
You're welcome, Jo. You just never know until the test results come back. The doctors also thought there might be tumours in my ovaries and womb, but following further investigation they were clear of cancer. Sometimes when you get started, every little spot shows up and so it has to be investigated to make sure.
I am grateful for this forum too. It is such a supportive place to come!
Take care,
Sophie x
We will worry, no matter what! I’m glad your doc is biopsying the node under your arm. That’s an easy procedure and will confirm your cancer is still the same type. You should ask him if they are submitting it to find out what the best treatment for your cancer type would be. I sounds like you are being very well taken care of, so I would try not to worry until you have all your results back and then you can worry again! I have to tell myself that I don’t have enough information to worry and give myself permission to quit for a while! Elaine
Hi
Thanks for your response. I agree, I think I am being well looked after under our excellent nhs, especially during COVID-19. I really feel for those ladies who are faced with medical insurance restrictions.
I had a biopsy under the arm 2 years ago and several scans etc when I was diagnosed with MBC. I imagine they are doing another biopsy to see if anything has changed..... since being on palbo?? I was too shocked last night to ask questions....
I’m feeling OK at the moment and what will be will be!
Jo xx
Glad you are feeling better. Breathe!
If only worrying helped! I’d be cured! 😀
I try to cut myself a break because I find that otherwise I feel bad about worrying too, on top of everything else. That’s too much of a double whammy.
Since your nom de plume is Sunny Drinking, I’d like to tenderly suggest you find a warm spot outside and have a nice beverage. You earned it.
Good luck. Keep us posted.
Hi
Well I love your suggestion of a drink in the sunshine but the weather has changed 😂.
Heyho, we apparently need the rain as we were about to have a hosepipe ban!
See you’ve lifted my spirits already .... in true British spirit, I’m back talking about the weather!!
Jo xx
Hi Jo
I know what this worry feels like...I’m going through a horrible time as you probably know...can’t eat feel sick when I wake up and I’m scared ...telling you not to worry as you probably still will
I hope you can get your scan and biopsy done ASAP then you know what or if anything’s going on then if necessary it will be dealt with
Thinking of you
Love Barb
Xx
Hi Barb
I’m also thinking of you a lot at the moment and all the lovely ladies on this forum.
I’ve already got my MRI scan booked for Friday afternoon - so not too long to wait. I’m a large lady & I feel so squeezed into the noisy tunnel.... But I will close my eyes and get in with it!
One moment, I’m ok and the next I’m in bits! I’m trying to keep telling myself that no amount of worrying changes things.
Even if there is progression, I aware that there are still treatment options...
Take care & try and be kind to yourself.
Love Jo xx
Sunny,
It seems I'm a few weeks ahead of you. A CT in March showed a 1 cm suspicious nodule on my liver. The MRI was done 3 weeks ago and showed enhancement. The radiation oncologist here says it would be easy to"zap" but I have my appt at MD Anderson next week for another CT and their recommendation. I know Barb didn't fare well with her radiation to the liver, so I will be hesitant if that is the suggestion.
I'm so frightened. I've only had one good scan since my MBC dx. I don't want to have to leave Ibrance, and I'm not sure if my needle phobia will allow me to do fulvestrant. I'm a depressed, anxious mess.
I hope Sophie was right about the haemangiomas. I apparently have several of those and am told they are common. Maybe just focus on that until you know something definitive.
My thoughts are with you, and my fingers are crossed. Please let us know your results. Try to do something nice for yourself!
Andi
Hi Andy
Thanks for your reply. I will be thinking of you and wishing you well at your appointment next week.
Like you, I’m very happy with my current palbociclib & letrozole treatment with minimal side effects and don’t really want to change. I’ve been on this treatment since August 2019 so I guess I’ve been fortunate up to now....
Take care and please keep us updated.
Jo x
To all of you, sunnydrinking, Barbteeth, and anyone else doing this hard. I’m thinking of you sending loving hugs to you and your nausea, or your fears, or your worries. It’s a hard thing we are all facing. But harder for some than others.
Of course you are frightened and worried.
I think we are so incredibly lucky here on this site. I’m so thankful I found you all.
Just reading and sending thoughts.
I'm sorry you are going through all this. I wish I could say don't worry, but we all do. You are right though, worry doesn't change anything. I have to learn this too.
I wish you the best with your mri..
Glad your bones are looking good!
Hi Sandra
I’m also thinking of you, Barb and all the other ladies.
Quite a few of us have challenges at the mo....
MBC is a roller coaster journey.
One moment I’m fine and then I’m not.
Take care
Jo xx
Hi Jo
Even when you hear different news from your scan you show positive thoughts, and I fully believe that helps a lot. I know there a bad times and negative thoughts as well.
Keep smiling and drinking and let us know how you get on.
Clare x
Thinking of all you ladies currently going through particularly difficult times with your treatments and hoping there is better news soon for all of you . Sending lots of virtual hugs x
It is so unnerving to hear about unusual findings and have to wait for more tests. But you are doing absolutely the right thing by getting a biopsy. In addition to genetic testing, the area can be checked for ER, PR and HER2 receptivity, as it can sometimes change. Thinking of you and wishing you success on your treatment!
Hi
Thanks for your response and of course, I’ve been reading through the excellent book you so very kindly produced.
It makes a huge difference to me being aware of all the possible next treatment options etc.
I agree, it’s also useful to have a biopsy so they can potentially be more targeted.
I will keep you posted.
Jo x
Jo, sending you very best wishes! Fingers and toes crossed that all will go smoothly for you!
I’m waiting for a call regarding my PET scan yesterday! It always causes anxiety for all of us! I’ve taken Ibrance for 19 months and then began to see some activity, so they changed me to Verzenio and Temoxifin . If I still show activity with this regime, then I’ll be forced to go on straight chemo! I pray that doesn’t happen! Has anyone been on Taxol and had side effects? Please share your experience! Gratefully, Kathy
CT Scan results - confused
Results Total body scan and CT scan
