Disappointing CT Scan Results - SHARE Metastatic ...

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Disappointing CT Scan Results

Sunnydrinking profile image
39 Replies

Hi Ladies

After 10 days of anxiously waiting, I got my scan results yesterday.

On a positive note, my bones are still stable & my lymph node under my arm has shrunk slightly.

Unfortunately, my lungs & liver are showing significant progression.

It’s so disappointing after going through so much chemo, my latest line was Eribulin.

I’m fortunate in that I am still feeling well & not in any pain. I’m not showing any symptoms other than tiredness & getting out of breath if I walk too far. On the whole, my quality of life is good.

I’ve been offered gem carbo to try next …

I’m going away to Tenerife on Sunday for 5 nights with my sister & hope to be swimming in the pool in the photo at our hotel.☀️🏊‍♂️🍸🥂🍾🏖☀️

Hubby Steve & Teddy 🐶 will be home alone 🤣

I will think about things whilst I’m away.

Very best wishes to you all on world cancer day.

Jo xx

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39 Replies
jersey-jazz profile image
jersey-jazz

Dear Jo -- I am glad that your quality of life is good. I hope that you and your sister have a lovely time in Tenerife. You go girl!

Wintervt profile image
Wintervt

Dearest Jo,So sorry to hear about the progression but happy to hear that your quality of life is good! Hope you and your sister have a lovely vacation!

xo Jade

Discocat profile image
Discocat

Hello Jo

Glad that your pain free and off on a break to Tenerife.

Have a great time, recharge in the sunshine (hope you have loads) and come back energised!

Best wishes

Zoe xx

Teddielottie profile image
Teddielottie

Hope you have a lovely sunshine break away from it all and come back ready to face the new challenge ! Sending love and hugs x 💕

I share your disappointment. You are wise to embrace your sunny and warm vacation now. Push the rest away if you can while at this lovely spot. Try to order a drink with an umbrella in it. This place is gorgeous. You deserve it!

Tolife_18 profile image
Tolife_18

So sorry to hear about the progression Jo. I’m glad that you’re pain free and embrace the life. Have a wonderful time in a sunny Tenerife!

Pbsoup profile image
Pbsoup

I have no idea if this is possible in your case, but could you ask about localized liver treatment—Y 90 or ablation or…? It seems as your quality of life is so high that you might be a candidate. It wouldn’t help the lungs but might reduce tumor burden a bit otherwise?

I’m making this up and am not a doctor of course, but why not ask?

Did you ever try Xeloda? Many women have had success on that as well.

In the meantime enjoy Tenerife! That hotel looks gorgeous 🌞🕶

debbiedo2063 profile image
debbiedo2063

Hi joSorry there has been progression in some areas but you do sound positive and ready to face the challenge of new meds. In the meantime enjoy Tenerife and the lovely sunshine.

Debra xxx😍

BluHydrangea profile image
BluHydrangea

Sorry about your disappointing results. It’s great you are having a get away to a warm location! Best wishes to you!❤️

SeattleMom profile image
SeattleMom

Hi, Jo!

What a beautiful respite you are going to enjoy! Sorry you weren't happy with scan results and pray that your new protocol will be successful. God bless you, Jo!

Linda

hdhonda profile image
hdhonda in reply to SeattleMom

Linda,

Glad to see you back. I have been thinking about you. You were missed. Blessings, Hannah

Arisgram profile image
Arisgram

I'm sorry, Jo. That's a kick in the teeth. Enjoy your beautiful vacation spot with your sis. Thinking of you. Much love, Andi

Hazelgreen profile image
Hazelgreen

Hi Jo,

We seem to have had similar results from our CT scans. I was very disappointed today when my CT scan indicated that my targeted drug had not improved my lung and liver mets. Like you, though, I seem to be in relatively good health for someone of my age and medical history.

I've yet to take any chemotherapy. I'm not planning to take any meds for my liver as long as my liver enzymes are in the normal range. There seems little can be done specifically for the lung mets. Fortunately, they too seem to be slow-growing.

I hope your lovely island vacation gives you the break you need to reflect on what to do next.

Best wishes,

Cindy

mariootsi profile image
mariootsi in reply to Hazelgreen

Cindy, sorry to hear about your scan results!

Hazelgreen profile image
Hazelgreen in reply to mariootsi

Aww, thanks for your sympathy, Marianne! I'm glad your results indicated stability. Maybe next time mine will too.Hugs,

Cindy

mariootsi profile image
mariootsi in reply to Hazelgreen

Yes it will.

in reply to Hazelgreen

Sorry for your disappointing results too Cindy.It is so good you feel so well.

I do hope your next results will be more stable

Clare

Hazelgreen profile image
Hazelgreen in reply to

Thanks, Clare. I much appreciate sympathy from those who best know our situations.Hugs, Cindy

stardust1965 profile image
stardust1965

Jo, I’m so sorry you have received disappointing scan results, but admire your fortitude. Have a wonderful holiday with your sister and come back ready to crack on. (And you won’t have to do a mandatory Covid test on your return!) ✈️☀️🍹🤩

Justme153 profile image
Justme153

I'm sorry about your disappointment with the scan. I'm Happy you still have quality of life. Go enjoy that VACATION!!! You and your sister at that beautiful resort!!! 🌞🍷🙏

AvidBooklover profile image
AvidBooklover

Jo, drat drat drat on the scan news. But that pool. I am a swimmer and Tenerife looks like just what the doctor ordered! My favorite pool to date is the one at the Biltmore in Coral Gables. It is amazing how therapeutic a stay like this near water will be. Soak in and just escape and enjoy!Carol

Thatflowerlady profile image
Thatflowerlady

I am so glad that you are feeling well and pain free . Your little get away looks and sounds great for the soul . I hope your weather is perfect . This roller coaster of a disease is exhausting , a recharge may be just what you need to tackle this new treatment.

Sending positive vibes for an effective , but gentle on you treatment plan .

Luann

love2golfwell profile image
love2golfwell

Dear Jo, I too am so sorry about the progression you are experiencing but glad that you feel well and are not having pain. You have always shown a positive outlook in your posts and it is good that you feel comfortable with your quality of life. That is most important in dealing with MBC. I think it is great you are traveling with your sister to a beautiful place. Love the photo you shared. Have never been to Tenerife but it looks awesome. Have a wonderful time and try to live in the moments you are spending with your sister. Sending hugs.

ChrisVict profile image
ChrisVict

I’m sorry about the progression in liver and lungs but you have another drug treatment on way and there will be more and newer ones. Your break with your sister at that wonderful place looks perfect. It will revive your sole, increase vitamin “D” and reinforce your incredible attitude

13plus profile image
13plus

I’m so sorry to hear your scan results showed more significant progression. That sucks! This beautiful place looks like the perfect respite to enjoy, replenish your soul, and reflect on what’s next. Perhaps a second opinion for an alternative option? I’m glad you’re feeling freeof pain and are able to get away and have a break with your sister. Soak up all that goodness!

Bettybuckets profile image
Bettybuckets

Hi Jo- sorry to hear the news… glad you aren’t in any pain.. that seems positive. I just got my results too. Similar mixed bag like you… bones stable and some new area that sounds like abdomen to have to get a PET scan to see. Alway waiting for the other show to drop. I love your plan to be I crhT gorgeous pool! Send pics so we can live vicariously through you!

mariootsi profile image
mariootsi in reply to Bettybuckets

Sorry about mixed bag. Damn cancer!

Aquadog profile image
Aquadog

Dear Jo - Very sorry to hear about the progression. I'm glad you're feeling well and are heading out on a vacation. I confess I had to look up Tenerife - I had no idea where it was, but wow - looks incredible. Go, enjoy, relax. Come back strong and rested, ready to take on the next challenge.

With hugs

Susan

mariootsi profile image
mariootsi

Jo, have a great time! How beautiful!

Eliactida1955 profile image
Eliactida1955

So sorry to hear the news. Be strong we are all in this to fight it. I know they will change treatment but can I ask you what ones are you on? I’m praying for all and wish for the best!🙏✝️

hdhonda profile image
hdhonda

Hi Jo,

I am crying with you today, but will be drinking wine with you and your sister Sunday. 🥂 A relaxing five nights is just what you need. I am pulling for you. Blessings, Hannah

Oh Jo I am gutted for you. All that chemo and you have got through it so well.The break will do you wonders I am sure, and you can live up to your name. I could lie in that pool all day long.

Let’s hope the next treatment has better results.

Clare x

hurricaneheather profile image
hurricaneheather

keeping you in my thoughts. may you be happy and at ease in Tenerife; hope you will be swimming in that LOVEly pool!

SoCalLady profile image
SoCalLady

ow long and how did you do with Eribulin? I just started. My first injection chemo. If you are having breathing problems, you might check for plural infusion. (fluid around the lungs). Mine was bad, caused by the cancer. Once removed, felt better.

RLN-overcomer profile image
RLN-overcomer

Do have a great time with your sister in what looks like paradise. Sunshine, and 1 drink a day can't hurt Sunnydrinking😀. I hope/pray your next treatmen will kick C's a--. Oops forgive me LORD. Enjoy your vacation as I will live vicariously through you.😇

Lovemylakie profile image
Lovemylakie

I am sorry to hear about your progression. I just had a scan in January and liver tumor had grown a bit but they are keeping me on Eribulin but keeping a close eye on it. My lung tumors are stable. When Eribulin stops they are putting me on Doxirubin. Glad you are feeling well. I too struggle with fatigue. I am going in for cataract surgery on both eyes. I will be so happy to have clear vision again.

Your hotel looks beautiful

You both have a lovely time.

Hugs

Robin

Joannaaaa profile image
Joannaaaa

❤️ enjoy Tenerife

LadyKatarina profile image
LadyKatarina

Hi Jo! What is the name of this Tenerife hotel? I doubt I'd ever get there--but one can dream! Hope you had a great stay! Kay

Eliactida1955 profile image
Eliactida1955

Have fun and enjoy -wish for the best. I go to md Anderson on the 6th and I will see. Stay strong 🙏✝️

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