I’ve once again received news of liver progression from my latest CT scan following 10 weeks of Epirubicin.
My report confirmed a mixed response to treatment with a decrease in size of the left axillary node however an increase in size of the liver metastasis and a new right pleural effusion. Diffuse subcentimetre pulmonary nodules and skeletal metastases are considered stable.
I am very disappointed to hear this news as is my Oncologist.
My nhs treatment options are running out …. It’s so annoying as I feel so well and have tolerated all the treatments very well.
My oncologist has now advised trying Eribulin and I am currently researching this & likely to give it a try.
I was feeling very upset & scared yesterday & I DM’d Sandra, who very kindly calmed me down .. A huge thank you 🥰
Having slept on things, I’m feeling more positive as at least I still have treatment options.
The main thing is, I’m still feeling really well & enjoying life 👍
Today, I’m enjoying the break from my usual weekly chemo & have a huge “to do” list that’s keeping me busy!
We are having our 3rd Covid boosters tomorrow & then we are off to Marlborough.
Very best wishes to you all.
Jo xx
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Sunnydrinking
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Hi Jo I am so sorry to hear about your progression but happy that you are feeling so well despite this . This group of wonderful people are here to support you . Enjoy your vacation away and from your treatment .
So sorry to hear about your progression. It sounds like you have a good plan moving ahead. Enjoy your vacation and know that we are here if you need us.
Cancer just sucks. I understand that a few new cancer treatments are going to be available in 2022 and am hoping that at least a couple are good MBC treatments. Have fun on your trip. Remember having fun is a kick in cancer's butt, so have a delightful vacation. Best wishes. Blessings, Hannah
I am so sorry that your news wasn't uniformly good, and was wondering whether it might be worth considering sending the pleural effusion to pathology to see what the cancer's HR and HER2 status is and whether there might be actionable mutations. Or possibly a liver biopsy, although that would potentially be more difficult. Please know I'm thinking of you and hope that your next treatment works beautifully!
Jo - I’m disappointed for you as well. Especially since you have been feeling well. I sincerely hope that your status is driven by how you feel versus numbers.
Good luck.
PS. We are all so fortunate to have Sandra’s input.
Oh Jo what sad news. You must have been shocked, especially with feeling so well. Sound like you have recovered and are getting on with life. Glad the next treatment is getting planned. Enjoy your tripClare
Sorry to hear of your most recent results. And that you are being offered limited treatment options. I hope they are able to find something that will work for you with minimal side effects.I hope you continue to feel well. Thinking of you and sending a 🤗
I am so very sorry about the progression on the medication you were taking. That is very disappointing. I am glad you feel well and have a good quality of life. I believe that is so important with this disease. Enjoy your break from treatment. Hope you get a lot accomplished on your to do list and have a great trip to Marlborough. I am in the U.S. so I am not sure where Marlborough is but assuming it is somewhere in the UK. Keep thinking positive thoughts and know that you are in my thoughts and prayers. Sending hugs.
I am starting my journey after Capacetabine stopped working. I see you have done a few more treatments and are still positive Which gives me inspiration and I do believe there is still more. My bone biopsy showed changed composition of er and her Did yours also morph? My onc is busy outlining the options going forward for me. I feel we are living break through times and am hoping for the best.
Hi Jo, it’s so disappointing to get those results. Given that other mets are stable, would you have an option to have STRT or Y-90 (radioablation) treatments for the liver mets? Not sure if it’s an option for you given limited NHS choices, but I thought I mention them regardless as they’re safe and show good results. All the best to you and enjoy your trip!
Hi Jo , I’m so sorry to hear your news but Sandra is amazing and she’s a rock and an ear to all of us 💕I’m waiting for my 6 month scan results of my mets after 13 months Ibrance and I’ve a feeling it’s going to be a bit like yours given what my onc said the new symptoms but here’s hoping 🤞.
Yes we got new treatment here in the uk which hopefully the good old NHS will approve for us warriors !
I’m so happy to hear that your so well and going to Marlborough it’s good to have goals and plan .
My husband had regular radio ablation in Liverpool for his liver mets for 4 years it’s so successful and easy to have but we had to ask fo it and it’s available on the Nhs so ask your oncologist ,
So sorry to hear about the progression but, so happy to hear that everything else is stable and that you are feeling really good and enjoying life! Enjoy your break off treatment and have fun in Marlborough! May your next treatment be most effective with manageable side effects! 🙏
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