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Hope you all doing good

Alive-today profile image
19 Replies

I do my best not to let this situation get to me, of course i loose control alot of times, i am a human. I live in Cyprus, i have 3 beautiful boys, 33 31 23. I am 56, i am on ibrance 125 letrozole and calcium +D3. I had a mastectomy on one breast end of August 2019 and i am stage 4. The last 2-3 days i have been having headaches sharp pains on the side of near the eyes, also feel that my head is bruce, is anyone else having this experiebce ? If so how do we deal with it ??

Thank you in advance

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Alive-today profile image
Alive-today
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19 Replies

Hi,

I'm sorry to hear about the headaches you are experiencing. I would mention it to your oncologist or oncology nurses. You should not have to put up with a headache for so long with no relief. I hope you feel better soon.

By the way, whereabouts in Cyprus do you live? My parents were from Galini and Pendayia.

Sophie

Alive-today profile image
Alive-today in reply to

Thanks for your reply, yes i will talk to my onchologist, i live in strovolos, Nicosia

in reply to Alive-today

You're welcome. I hope you get some answers from your oncologist. Hopefully it's nothing to worry about, but it's best to get it checked out. One of my uncles lives in Nicosia. Most of my extended family lives in Limassol though.

Hi Alive-today,

I don't have any experience/words of wisdom with the headaches, but just wanted to let you know that I'm sorry you're experiencing this and I'm hoping for the best for you.

Take care,

Lynn

p.s. I see other responses re: Cyprus...My accountant in NYC is a Cypriot, wonderful fellow; he goes back every year to visit his mom!

Alive-today profile image
Alive-today in reply to

Than you for your reply, i will check it out with my doctor. That's nice of your accountant visiting his mum so often , my middle son lives in England wich i miss him very much , he was going to visit me next month, with all this virus happening i don' t think i will see him. Take care

Red71 profile image
Red71 in reply to Alive-today

I’m sorry this virus is going to stop your son from visiting. The lack of ability to visit with family is the worst part of the pandemic. My sons are within 15 minutes drive of me but I still can’t see them.

No words of wisdom about your headaches either, but if you aren’t going to see your oncologist soon I would call in and talk to a nurse.

Hugs from the west side of the US! Elaine

Alive-today profile image
Alive-today in reply to Alive-today

Thank you for your reply and the love i receive from your msg, take care

mariootsi profile image
mariootsi

Hoping for relief of your headaches. Call your onc and find out what's happening. I wish you well. Take care.

Fighteragain18 profile image
Fighteragain18

I get headaches but unsure related with the drugs . I’d contact your oncologist xxx

JoyBe profile image
JoyBe

I would look up the "in active" ingredients of your specific generic Letrozole.

From my research and personal experience "in active' ingredients in generic drugs are actually "active". I went thru 4 different types of generic Letrozole until finally taking Femora.

Each generic Letrozole in active ingredient caused different side effects.

Who knows why I am so sensitive to medication, could be I have very little history of taking medicine.

I'm sure my DNA plays an important role with my health. I have a lot of Irish, a little Greek and a tad of Welsh in my DNA.

I mention checking the Letrozole to out rule the source of your sharp temporal head pain. Also if you are on any other medication that could be having an adverse reaction to the Ibrance and Letrozole since you have not been taking those 2 medications for very long.

The sharp pain your describing comes from the temporal part of your head.

With that said, keep track of your BP as it relates to the cranial eye nerves.

I say this because I had a cranial nerve stroke of the 6th cranial nerve that impacted my vision causing me to see double. The Cranial Neve Stroke was from sudden emotional distress that caused a extremely high BP just 4 months before I was diagnosed with Metastatic Breast Cancer in my bones.

I was in the hospital for a week on intravenous steroids to bring the BP down.

Also, I would have my eyes examined to out rule that as a source for the temporal sharp pain.

We have to advocate and educate for ourselves to secure our own longevity. Having a positive and inquisitive attitude always promotes healing.

I'm confident you will discover the source of the temporal pain and you'll start feeling better !

Alive-today profile image
Alive-today in reply to JoyBe

You had alot of things going, you sound to be a very strong person, hope everything goes weĺl, thank you for the courage your giving me

JoyBe profile image
JoyBe in reply to Alive-today

You got this, feed your courage with faith and it will grow strong through all your discoveries.

Stay grounded by connecting with the rich history where you live and the ancestors from the region who were survivors, get plenty of sunshine, relax by the ocean, eat local food and embrace and enjoy all living things.

Here is a link to look up generic drugs: pillbox.nlm.nih.gov/pillima...

Alive-today profile image
Alive-today in reply to JoyBe

Beautiful words, thank you for the courage you are giving me, i hope i can do the same to you

JoyBe profile image
JoyBe in reply to Alive-today

You are doing the same for me by reflecting on my shared thoughts. I'm sure you will pass them along when needed to others in your life.

Be well. xx

Alive-today profile image
Alive-today

Thank you so much for the info, i did check my eyes, everything ok, what is a BP ?

JoyBe profile image
JoyBe in reply to Alive-today

It's your Blood Pressure

Alive-today profile image
Alive-today in reply to JoyBe

Ok, thanks will ckeck

PJBinMI profile image
PJBinMI

I don't have any info to add about the headaches, but knowing you are in Cyprus put a smile on my face. I used to be part of a large on line group of bcmetsters and we had a member from Cyprus. She got good medical care there, so I just wanted to pass tha t along.

Alive-today profile image
Alive-today

Thank you for replying, i am happy i put a smile on your face, i don't know yet how to sent fotos but i will do my best to keep that smile going

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