Hi everyone. I am so pleased to meet you all.

Hi everyone. I was diagnosed January. 2 large tumours grade 3. Invasive, aggressive and advanced. Oncologist said he would see me after lock down over. So pleased to have found this site. Reading your experiences makes me feel I am not alone.

[Barbteeth]

Hi there

You’re certainly not alone

All the ladies on this site have experienced what you’re feeling now...I was in shock for a long time after my diagnosis two years ago and even now I wake up and cry as it all comes back to me...the fear the rage and the sadness

I come to this site most days and I know I can say absolutely anything on here because everyone understands...I do have friends and family but although they worry about me etc they don’t get it

I wish you well...keep us informed of your progress...are you in the uk?

Barb xx

[Hidden]

Hi,

Welcome! Many of us feel alone when we are first diagnosed, as so many breast cancer patients are early stage. So their situation is completely different to ours, as there is an end in view for them. But with metastatic disease we have to adjust to the fact that we will always be in treatment. I hope you will feel free to join in with discussions or start your own. There will always be someone on hand to respond and who understands what you are going through.

Sophie

[Barb5]

Welcome to the club nobody really wants to be a member of but unfortunately we were dealt this hand. This site and group of ladies are the Best💖

It is so comforting have each other to vent to who truly understand what we are going thru. I learn a lot of information about side effects and different treatments from this site from people who truly care and understand my feelings. I know what questions to ask my Ongologist about side effects and treatment options because of other’s experience in fact while asking my doctor about side effects and suggesting to him which Ned it’s from because others on the site had experienced the same he looked at me puzzled and asked me if I was in the medical field lol I said no but I learn a lot from the woman on my metastatic cancer site. I’m so thankful for everyone on this site.

[Hidden]

I’m so sorry you have to wait till after lock down. We have had a lot of changes but thankfully oncology is still seeing patients and testing is being done. This site has given me so much support over the past two years. Don’t hesitate to ask questions or tell us how you are doing.

[Hidden]

Glad you have joined. You certainly won’t feel alone having this forum. The ladies are wonderful. It’s such a pity you are unable to see an Oncologist yet. Most of us are having telephone consultations unless there is further problems. Are you having blood tests done? I have Stage 4 mets in my bones and lungs after first being diagnosed in 2013 with stage 1 breast cancer. I was diagnosed December 2018 second time. I am on Letrozole, Ibrance and Denosumab. I’m awaiting results of my CT scan. I have them usually every 3 months but it’s been 5months this time as the Oncologist would rather patients didn’t attend the hospital. Each lovely lady on here has different treatment and approaches to their diagnosis. You will find out when more read your post.

Sending best wishes and take care

Cheryl

[Beryl71]

I was diagnosed Stage 4 during lockdown. I'm really pleased they started treatment for me straight away. It's been hard living on my own, but this group has helped me feel supported, so much sharing.

[Hidden in reply to Beryl71]

Welcome. It's certainly a good group.

[13plus]

Peskyone You will find lots of support here. I am curious where you’re located that you have to wait until after lockdown to start getting any treatment.? I thought most places were still providing help one way or another but I could be wrong .

[Hidden in reply to 13plus]

Hi. The treatment I am getting is letrozole. I live in the U. K. Cambridgeshire. Thank you for your meeage it was nice.