Doing good on Piqray and PetScan

[Kaylab]

I made it another 6 months. I had petscan today. All cancer is still sleeping, not active. I get to stay on current meds. I am Er+pr+ and Her2- with PIK3. Piqray and fluvesterant is still taking care of my Mets. - Diagnosed stage Nov 4, 2020. Numerous Mets to liver, lungs, spine, pelvis, ribs, 2 fractures in spine. I was full of Mets. Took Verzenio with letrezole was my first line treatment for 10 months. Got NED after 6 months. 4 months later on the PET SCAN saw slight progressions. PIQRAY since Oct 2021.. PETSCANs every 5 months showing NED AND NEAD.

NED is used in describing no evidence in tissue/organs.. NEAD is used in describing no evidence of active disease in bones. There will always be evidence due to healing/scarring on bones, but not have active cancer cells.

[awesome4ever]

You are doing so amazing. Congratulations and thank you for sharing your wonderful news with us. Although I am not a candidate for Piqray I'm sure your news will be encouraging to many as it often gets not so favorable reviews. May it continue to work for you for a long time. Take care.

[Kaylab in reply to awesome4ever]

Thank you.

[Best521]

Glad to see you are doing well on Piqray. So many have come here to post about the bad side effects of Piqray that the thought of taking the drug, should it be in my future, was down right scary. However based on your success I would feel much better about going on it, if needed.

[Kaylab in reply to Best521]

Piqray is not scary. Plus it gives us one more med to try. Just have to get the side effects under control much like all the other treatments. I have seen many doing bad on piqray and many doing good. Hard to use each others experiences and diagnoses because we see so many different outcomes and symptoms. I will make it to 3 years since diagnosis in Nov. I had so many Mets in my bones, liver and lungs I thought I was a goner. Good luck with your treatment.

[Red1246 in reply to Kaylab]

So very happy for you. Hope you continue to do well!

[Kaylab in reply to Red1246]

Thank you

[Totheriver in reply to Kaylab]

So very happy for you💕

[Kaylab in reply to Totheriver]

Thank you

[atoth17]

That is wonderful news!!!

[Kaylab in reply to atoth17]

It is thank you

[Adele_Julia]

That’s awesome !! I was on Piqray for 14 months with no progression !!!

[Kaylab in reply to Adele_Julia]

That’s great. What did you go to next after piqray?

[Adele_Julia in reply to Kaylab]

Xeloda

[Kahe]

So happy for you Kaylab and thank you for sharing your good news, always good to hear encouraging news. Holding you in our thoughts and hoping for the v best for you 🙏

[Kaylab in reply to Kahe]

Thank you so much.

[love2golfwell]

So happy for your wonderful news! I hope that you will continue to do well on this protocol and not have any unwelcome side effects. Sending you hugs and prayers.

[Kaylab in reply to love2golfwell]

Thank you. I appreciate it

[BluHydrangea]

Great news. Piqray has been great for me too!!!

[Kaylab in reply to BluHydrangea]

I’m happy for you. Thank you

[mariootsi]

Omg how wonderful! Continued inactive cancer!

[Kaylab in reply to mariootsi]

Thanks

[ba5083]

Fantastic news! Your post made my morning!

[Kaylab in reply to ba5083]

Thank you. Glad to lift you up a little.

[NPmary]

Good for you 😍

[Kaylab in reply to NPmary]

Thanks

[WhippetX2]

Congrats on the good news and thanks for sharing! I think we all appreciate hearing the good news of someone thriving.

[Kaylab in reply to WhippetX2]

Thank you. I do as well.