Hi ladies,
I am having scans tomorrow, a CT of the chest, abdomen and pelvic and then a bone scan as I have been having alot of pain in my back. Previous scans showed degeneration in some discs so we want to make sure that is still just the case. I am trying not to worry as it won't change the results but easier said that done.
Just need some support and prayers from you all. Will keep you posted and thank you.
KIm
Kim,
Sending prayers and positive energy for good scans.
No amount of anxiety can change results but I can't get over worry either!
Hi KimI had a CT scan this afternoon and the worry about the results is always there..my concern is my continued rise in tumour markers
However I think I’m a bit more laid back these days and trust that my oncologist will act appropriately on the results
At least we’re being monitored
Barb xx
Thanks and here's to both of us getting either good or at least stable results!!
We all understand the anxiety of scans. Thinking of you and good luck.
Thank you!!!
Of course you get my prayers and a big hug ((())). Do you have any Xanax? Last time I was surpringly calm. Kept repeating a mantra to myself and visualized myself on the beach while on the tables. I really got into it. Fingers crossed for best results!💕
Yep have the good ole' xanax handy. I seem to be okay today so maybe tomorrow won't be so bad. I usually get the results in a couple of days but with tomorrow being Thursday I am sure my doctor won't have the results till Monday at the earliest and I will be out of town on assignment. Not sure I even want to bother trying to find out the results before I get back. I am going to a new client and if the results aren't good I can be overly emotional and that wouldn't be very professional. I guess I will play it by ear.
Thanks for the prayers and hugs Nancy.
Kim
Do I get the results over the phone or in person?
Depending on when my appt is but my doctor usually calls me.
Awe Kim its the damn emotional roller coaster mbc ride. I will keep you in my prayers and sending gentle hugs. I agree if you can hold off knowing results, do that. I have to be in safe zone to get results because I know it can be bad news or whatever. Do what is best for you and doesn’t cause you extra stress. Working often puts it on the back burner a while. Praying for good results💕
Love
Franced
Thanks so much. You know I never did like roller coasters!!!
Thanks Sandra. Will keep you posted.
I’m saying a prayer for you Kim. Owing everything is good.
Hoping
I’m worried tonight too. I saw my oncologist yesterday and we discussed the PET Scan I had a week ago. It said there was no hypermetabolic activity in the spine and that it had probably scarred over. He wasn’t sure about this said people were beginning to see this with treatment now. We decided I would continue on my same regimen of Ibrance/letrozole. I came home and can’t find anything about scarring and what it means. Have any of you had this or know anything about it. Am I cured? Is there cancer under the scarred lesions. I’m so confused and worried too. Any body???
It is something to be happy about, not worried. It means that for now your medication has beaten back your cancer. The hard part of having MBC is that the cancer eventually finds a way to outwit the medication. That may not be for some time and you do need to keep taking the same medication. Most of us think about this being a chronic disease when we get to this stage. It’s where I am now. I go on doing all the things that keep me healthy but I also enjoy each day. When my medication no longer works there are a) Other treatments to try and b) maybe a cure by that time. Be happy and go celebrate! I’m sorry that your oncologist didn’t explain what all this meant to you and you were anxious over it.
Well said!
Healing as in cured or will the site become active again
You got it ! It seems most of us on treatment are having good results, so I’m counting on that for you 😺
Thanks me too. 
Hi Kim,
I wish you well with your scans. I've got my CT scan later this afternoon, and am trying to stay positive. I hope you get some good results and that the pain is just from healing.
Sophie ❤
Thanks Sophie. I hope yours come out well too. I felt at peace today while getting tests. All the worry in the world is not going to change the results but will rob of us todays joy!!
Kim
Morning Kim,
You're absolutely right! I don't want to worry needlessly about scan results either. I went to my appointment on my own yesterday. I felt relaxed and cheerful. After the scan, the radiologist went over the usual drill about waiting for 15 minutes before having the cannula removed. I joked with her about waiting in case I conk out and she said not to do that as it would involve too much paperwork!😂😂
Sophie ❤
Haha. That’s funny!! I hope you have a good weekend. I leave Sunday for Hawaii but it’s only for work and am going alone so not really looking forward to it. Oh well there could be worse places to go. Just am going to try and enjoy the tropical island. I at least have an ocean view.
Kim
Thanks, Kim! I try to inject some humour into appointments when I can. I'm looking forward to the weekend. It's the May Bank Holiday, so that means a three-day weekend for us here in the UK. Have a great time in Hawaii. I wish I was "only going" to Hawaii! Enjoy the ocean views while you are there.
Sophie ❤
Enjoy your long weekend. Are you by chance a banker or do you get bank holidays off.
Thank you, Kim. No, I'm not a banker. A Bank Holiday is the British term for an American federal holiday.
Sophie ❤
That’s funny because we don’t have any bank holidays this weekend. Our next one is not till Memorial Day at the end of this month.
Hi Kim,
Yes, I know. My husband is American, so I have become familiar with when federal holidays are. Memorial Day happens to coincide with the second May Bank Holiday of the month, so it's a dual holiday. I can see how a "Bank Holiday" might be confusing! Banks are closed on those days, as are most high street shops. Supermarkets are normally still open though. Just to confuse you even more, "bank staff" refers to employees who work on an ad hoc basis, not in a bank! I have to watch my language whenever I am visiting my in-laws, as many of them are not familiar with some British terms.
Sophie ❤
Hugs and prayers to Kim and Barbteeth for good scan results. Blessings Hannah
I am having scans tomorrow as well. It is always worrisome. Try meditation before the scans. Pray for positive results.
Mimi
Please keep us posted. I am so thankful for all of you here.
Prayers for good news today, Kim! God bless you!! 🙏🏻❤️🙏🏻 Linda
Thanks Linda. I probably won't know the results just yet. I would love it if they were available tomorrow because I leave town on Sunday for assignment. In the event the news is not what i am hoping for i don't want to hear it alone.
Kim
Yes, I feel that way too. But many prayers going out to you through these next few stressful days. 😘🙏🏻🤗
Thanks so much.
Kim, prayers for you. Just went through this in March. It's tough.
Sending prayer! 🙏🏻💕
I feel your anxiety. I am having a scan of my pelvis, lungs, etc. The one they do every three months. I have metastasis in my spinal bones and pelvis. Right now I am on Letrozole and that has worked for a year and a half so far but every time I get a scan I am afraid that the Letrozole will have stopped working and I will have to go on Ibrance. I don’t know why I am so afraid of that drug. Guess it is the tiredness and low white cells that scare me. It would also make me feel like I am on the conveyor belt of treatments until there is nothing left. Sorry to be such a downer but I really have no one but you guys to talk about this experience. Any insights about Letrozole or words of encouragement will be received gratefully
Yea i hate the thought of being changed from drug to another. I wasn't on Ibrance very long because it didn't work for me, probably on it for 5 months and I didn't have the fatigue or low white cell counts. Towards the end of the 5 months I knew my hair was thinning a little but that's all I really experienced on it. I pray for the best for you and hope things are at a minimum stable.
Thank you for letting me know that it didn’t produce bad side effects but I am sorry it didn’t work for you. Do you mind me asking what you switched to?
I went on a trial that was 3 FDA approved drugs but the trial was using them together. It was affinitor, exemestane and then a cousin of ibrance. I could only stay in 9the trial for a few months because the side effects were to much. I am now on an oral chemo drug called Xeloda as it doesn’t seem like the hormonal treatments are working for me. Side effects are not to bad.
It sounds like you have had some rough going but you are an inspiration for me to stop being a baby and do whatever it takes. I will be praying that you have better luck with the Xeloda. Keep me posted.
Thank you for saying that. You made my day. I don’t feel very inspiring but I try. I have a grand baby coming this month and I want to see him grow up. Love and prayers to you as well. 😊💕🙏🏻
Kim
Crossing my fingers and toes for you!!1
Good luck Kim, I’ll be thinking of you xx
Update on trial drug AC699
Scanxiety/ibrance
A bit of a set back
Moving on from Xeloda
