New diagnoses

[michelle3915]

Just looking for support from people who really understand. It's hard for someone who never had cancer to truly understand what is happening to your thoughts and emotions.

[Hidden]

Hi Michelle,

You have come to the right place. Welcome!

All the best to you,

Sophie x

[Arkait in reply to Hidden]

Hi Michelle, I welcome you to a very helpful group of women.

I first had stage three in 2013 and 2015, now suddenly, it seems

I discover I am stage IV (metastasis to right lung and chest area

lymph. ) I am just starting on Letrozole, haven't chosen to try

Ibrance, yet --nor dealt with finanicial help possibe from Phyzer

(spelling Phfizer?) . I am reading as much as I can and it would

seem the disease can be managed, at least. I am Her negative,

er positive, for which as yet there is no immunological cure.

I hope you are keeping up your spirits and in a fighting mood,

Good luck . Mary

[Barbteeth]

Hi Michelle

The ladies on here will help and give you strength..I’m just emerging from the black hole...it’s taken a while but couldn’t have done it without these awesome women

It’s not all doom and gloom...this is not fixable but treatable

All the best

Barb xx

[Toomanyquestions]

So sorry that you are experiencing this. I was dx in November only 2yrs since treatment for primary BC. I have x2 small children and had just finished renovating a ‘perfect’ home to raise my family in. I was in hospital for 3 weeks, on strong opiates until January which I stopped after another 2 week hospital stay. Then it hit me like a ton of bricks. I think I have PTSD. It has taken a long time to be referred to a psychologist. I start next week. I have tried antidepressants which made me worse. I am beginning to be able to walk again now so have started doing some normal things which has helped. My advice would be if you can try to keep normality. Mine was blown apart. Try not to be left alone. Get some help. The side effects of the drugs are very debilitating to start with. Mine have got slightly better since I am getting stronger. If you can’t sleep take sleeping pills. I’m still in a dark place but the other ladies on here are an amazing support and I would be much worse if I hadn’t found them X

[Hidden]

The folks on this site get it and you will find support and useful information here.

[SpongebobMom]

what I love about this forum is that the ladies here truly "get" me & what I am going through & thinking/feeling. while everyone's story is slightly different, there's a common denominator that brings us together in good times & bad.

[laurac1014]

Yes this is different from a diagnosis that you treat and move on. This one is for keeps. I'm just living my life, being hopeful and waiting to have a scan that lets me know my treatment is keeping the disease at bay. (Will freak out then if it is not)

[SeattleMom]

Hello Michelle!

Are you still on Ibrance 125? If so, you’re amazing! Many, like me, had to lower dosage due to impact on white blood cells. Ibrance can really zap your energy so don’t beat yourself up if that’s why you’re feeling blue.

You have already proven to be unbelievably strong in your initial fight against this awful disease! Please know that we all care and are here to share how we have dealt with similar feelings along this shared journey. God bless you, Michelle! Linda 🙏🏻❤️🙏🏻

[Kelly001]

Hi Michelle,

I am sorry you are going through this. I was dx at the age of 31/ Stage 1& again @ 37/Stage 1 and now MBC AT 48. I try and go on with my normal routine but my body sure does ache horribly bad due to side side effects from Ibrance/Falsodex combo.

Stay strong & fight on.

Kelly

MBC/Liver mets 2018

Ibrance/125- July 9, 2018

Falsodex- May 2018

Hysterectomy- June 6, 2018

[PJBinMI]

I am so sorry that you have to deal with this rotten lousy cancer. I was in your shoes 15 years ago, with mbc as first cancer diagnosis, and extensive bone mets. But here I am all these years later, and you would never guess that I have a serious condition if you saw me out and about. I have never had symptoms from the bone mets. No breaks, no pain, no restrictions. I have more trouble from a herniated disc unrelated to cancer but in an area of my spine with bone mets. Do feel free to talk about whatever here -- we do "get it" and will whatever it is. I hope you will do really well--many of us do. One thing I do suggest is getting a second opinion from a bc specialist onc, someone who sees patients and does research and is very up to date on research and treatment protocols. In the US, the best place to see oncs like that are the Comprehensive Cancer Centers, listed on the website of the National Cancer Institute.