Log in
SHARE Metastatic Breast Cancer
2,254 members1,561 posts

New treatment I am Stage4breast cancer ER(+)PR(+) HER(+)

I have stage breast cancer to the bones in July 2017 and I have been with Ibrance and Faslodex till now, my cancer markers are going up and MRI on December 2018 of my pelvis and Lumbar site came inconclusive the radiologist said that definitely He can not say that there is not metastasis on my pelvis because it may be reconversion of the bone marrow due that previous bone scan and PET-CT on August 2018 were negative but I have a lot of pain on my pelvis and now my oncologist is suggesting that I could start chemotherapy I told him that I could try another Chemo pill till my next scan, I know that Ibrance, Kisqali and Versenio are from the same Family what about Afinitor what are your suggestions I am concerned because if I start chemotherapy I do not think that I can work and I was hopping to work at least one more year before I retire or apply for disability I can not work because I work in a hospital and My shift is 12 hours and there is no light duty job

21 Replies
oldestnewest

Plasem, I originally was stage 3 in 2013. Stage 4 in June 2017, although I was stage 4 8 months prior to that. Markers do not work for me. It's in my ribs, spine, shoulders and front of hip bones. Started on ibrance and faslodex. After 6 months it had spread more. Am now on Afnitor and Aromasin for 1 year. Doing well with it. Some side effects but not the really bad ones. No nasea. The thing the Oncologist nurse told me was to drink as much water as possible. I drink about 60 oz a day. My hair has come back in very thick. I was losing it in handfuls on ibrance. The funny thing is all the hair on the back of my head has become so curly it's impossible to do anything with it. The top and front sides are still straight. That's an easy side effect. I would suggest using the swizzle mouthwash 4 times a day even if you have no mouth sores. I think it helps keep them at bay and if I do get one there not as bad. Hope this helps.

Reply

Thank you that is really good that affinitor is working for you God bless you

1 like
Reply

I was on ibrance and faslodex in 2017 and it worked for about 11 months. Then i tried xeloda and it didn't work at all, so i was put on Abraxane and letrozole and it is working so far. The side effects are not to bad either, just drink lots of water and get your 8 hours of sleep a night. Oh and i lost my hair, but it started growing back but very thin not enough to cover everything and it's falling out again. Best of luck to you with your new treatment!

1 like
Reply

Thank you Is Xeloda chemotherapy, take care and God bless you

Reply

Yes it's oral chemo

Reply

Thanks God bless you

Reply

I forgot I take Biotin for my hair is thinning but still growing thanks

Reply

Are u Her+? I am and I get Perjetta and Herceptin...u could definitely work with them. I do. Usually go back to work after treatment...a little tired here and there but I work full time and work Out 🏋️‍♀️ a lot...check into it...😀💕I didn’t know u could do Ibrance with Her2+

Reply

Thank you

Reply

I am not not sure about my HER

Reply

I am HER2 negative

Reply

The hormonal therapies did not work for me so I am on an oral chemo drug called Xeloda and am working full time. The only side effects that I am feeling from this are on my hands and feet. It causes symptoms much like hand, foot and mouth disease which is common in young kids. The symptoms are annoying but manageable. Maybe that is an option for you.

Good luck and hugs coming your way.

Reply

Thank you

Reply

Hello Plasem! Whenever I feel overwhelmed, I’m going to remember your post. Can’t believe all that you are handling while undergoing the side effects, especially exhaustion! I pray that your tests show no progression and that your pelvic pain subsides. God bless you! 🙏🏻❤️

3 likes
Reply

Thank you God bless you

Reply

If your onc isn't a bc specialist who sees only patients with bc, you might want to see a really specialized onc, at least for a second opinion. If you are in the US, the best places to go are the Comprehensive Cancer Centers. They are listed on the website of the National Cancer Institute and have oncs who see bc patients and do research and keep very up to date on the latest thinking about treating this lousy cancer. I got an appt to see a bc onc at a CCC about ten days after my onc called there to refer me for a second opinion. I will go back anytime I need to make really big decisions. I've been living with bone mets for almost fifteen years and several times radiologists have reported things on scans that my onc doesn't see at all when she looks at the films. I think some radiologists are so worried about missing something important that they over report and see things that aren't there.

Reply

It is really true, They are humans and made mistakes, I will have an appointment with my oncologist and get a CT and I will make a decision depending on the results to ask for a second opinion, thank you

Reply

I hope you can avoid traditional chemo. I have refused it twice and am so glad we tried other options instead. Cancer markers can go up for many reasons and should not be the sole reason for starting chemo. There are many other options out there thanks to our researchers!!

Reply

Thanks and what treatment did you do when you refused chemotherapy

Reply

Letrozol 2 years ago and now Ibrance and Faslodex

Reply

Thanks I am on the same treatment

Reply

You may also like...