Experiences with

Afinitor

Good morning friends, first of all I wish you all healthy and happy New Years! Last several days have been very tough for me! I have been sad and crying a lot! last week scan showed a mixed reaction, some tumors have shrunk and some have increased, but there are two new tumors on my liver which

Will be starting Afinitor + Aromatase Your experiences /suggestions/ how long did this combo work for you , will be much appreciated! Thank you ! Jo

I am presently taking Aromasin only until I finish my WBRT sessions but will be starting Afinitor 5 mg end of next week. Any advice will be most welcome including what side effects to expect. Many thanks! Maria

I’m about to begin Faslodex and Afinitor, which will be my 4th round of treatments in two years.

So not sure why my first script for Afinitor came in and is only a 14-day supply? I had been on Ibrance for 40 cycles and just failed to ask my MD today. I'm just in the 21 on 7 days off thought process.. I looked on line and did not see a break or off period for Afinator.

I started on Ibrance, then Afinitor, and now Verzenio. I'll finish the 2 1/2 weeks I have left on the Verzenio, then do a wash out for 2 weeks and start Piqray. Wondering what experiences anyone has had with this treatment. I'll continue to get monthly Faslodex shots and Zometa every 3 months.

She told me to stop taking Afinitor until we meet on June 2. Assuming my rash is cleared by then, she'll start me on a lower dosge of Afinitor.

In the meantime, I am taking Exemestane only to control my lung and bone Mets as my oncologist does not want to burden me with the side effects of Afinitor while I am on radiation treatment.

Bad news More liver tumours and a pleural effusio so Afinitor and exemastane haven’t worked My oncologist wants me to have chemo but no way so she’s trying the fulvestant injection I’m so upset Barb xx

I've been on Afinitor for 18 months and have lost one big toenail, and have started losing the other one. All of my fingernails are also separating - most are about halfway. Anyone else experiencing this? Anyone have any success in treating this.

😢 I was put on Afinitor and monthly Faslodex injections, and my mets were biopsied. No mutations and no changes to my cancer...just a recurrence. I had no side effects...but my mets did not respond to treatment after 6 mos. On 12/31/19, I started Talzenna.

I have been taking Afinitor and exemestane for a few days and last night started getting what seems like heartburn after I ate what was for me a normal meal. I dont think this is supposed to be a side effect. Has anyone experienced this?

Hi everyone, I will be starting the Everolimus and Faslodex combo this week after Arimidex combo with Ibrance stopped working after 20 months. I’ve seen a lot of posts mentioning the Everolimus in combo with Exemestane but not Everolimus in combo with Faslodex. Has anyone taken this combo and if

But it may be irrelevant if I just choose to go on afinitor. I have not heard the best things about afinitor so that makes me lean toward the clinical trial but it is really up in the air until I get more information. If any of you have any thoughts for me on that, I would appreciate hearing them.

I've always been prone to chest infections and a scan over 12 months ago found damage to my left lung (around the area that the radiotherapy was delivered to) and then more damage was found on my scan in December which was attributed to the afinitor that I was taking at the time.

My bone mets and original liver mets are stable, and the lung damage caused by the afinitor is improved but there are 2 new liver mets. Because of this my chemo was cancelled and I had blood tests to see if I was suitable for Xeloda. I should get the results in 2 weeks time, so more waiting.

It was interesting because my genomics test indicated that afinitor was my other option but my oncologist does not think that will help me. So I'm going to try this clinical trial which will probably be starting within a couple of weeks.

Hi ladies Well I’ve done over 6 weeks on my new meds...Afinitor and exemastane...no ulcers for which I’m grateful but I’m now feeling so weak so I texted my oncologist today requesting the 7.5 mg dose instead of 10mg and she’s agreed...hopefully I’ll perk up!!

After ibrance and faslodex stopped working in the summer, and afinitor and exemestane didn't work for me, the oncologist thinks that the cancer is now hormone negative, though the bones remained stable. I was accepted on a trial for cabazitaxel in January.

Have 4 holes where the laparoscopy procedure was done and it’s bruised I feel much better off the Afinitor for a week...no night sweats so I know which drug is the culprit...have to start it again tomorrow ugh...but on a lower dose The surgeon informed me that he took a small liver biopsy while he was