Now I'm back for advice. It is simply lucky to be able to find help here when you live in a small country where treating restless legs syndrome is not a top priority among doctors.
my first question: I see that the iron product I have started to take contains 50 mg of iron added as the iron chelate (ferrochel) - and as recommended by Joe, I take 2 of these every other night. Is it enough ?
Next question: I am trying to taper off pramipexole to switch to pregabalin. My neurologist said: You can just switch over (from 0.7 mg pramipexole to 75 - 150 mg pregabalin). My GP not quite as consistent - try a little at a time. And if too many augmentation symptoms, I got a prescription for contalgin depottbl. a`5 mg, of which I could take 1 together with pramipexole (now down to 0.450). At the same time take pregabalin 75 mg - 150 mg.
My problem is that I don't get any sleep because of restlessness and pain when I try to go down a little more with pramipexole. 1 tbsp. contalgin depot a`5 mg makes neither off nor on. But if I take 10 mg, I actually get 3 + 2 hours of sleep per night. Is 10 mg contalgin depotbl. over what is called "small dose opiod"? Or - will I have problems getting that dosage down again?? I am very confused about it all!!
Gibble
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My apologies - you need 3 of the ferrochel. Although as I mentioned before since it can interact with blood thinners you need to discuss the right balance with your doctor. At the very least take them a few hours apart.
Forgive me for having to take it in with big spoons But I just wanted to be absolutely sure because I have been given such different instructions. I follow your recommendation and thank you 100 times for your help. Also regarding dosage of iron !!
Your neurologist is incorrect. There are 2 methods of reducing Pramipexole. The fast route, for fit, otherwise healthy, younger patients, where you reduce over 3 weeks while increasing pregabalin. However, this is brutal for most and will involve severe RLS and little sleep.The slow route is recommended by most top RLS experts and involves a very slow reduction over at least 6 months, and starting pregabalin in the last month.
Contalgin isn't commonly known in UK and USA, but it seems to be morphine pills. That should help the severe withdrawals.
I am so grateful for all the advice I get from you and from Sue ! The neurologist I saw had perhaps expected that I would come in leaning on a walker? Looked at me - quickly assessed that I did not look involved enough for either slow tapering or the help of opioids. "NO, no . you're not there at all !" Didn't ask about night sleep or symptoms at all. The only positive was that he prescribed the full panel of iron - blood tests. Never had it taken before - despite many years of treatment with pramipexole from a general practitioner.
Can see on medicine packaging that Contalgin is yes - MORPHIN.
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