Medical Issues & RLS/PLMD: Hi all. I... - Restless Legs Syn...

Restless Legs Syndrome

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Medical Issues & RLS/PLMD

ircam2112 profile image
7 Replies

Hi all. I have recently been diagnosed with Celiac Disease (CD) and now wonder how much of my RLS/PLMD could be the result of an iron and/or other nutritional deficiency. My ferritin level is 160 so, a gluten-free diet may not help me re: RLS but, thought others should know that there is an established link (see attached studies).

Renal (kidney) and liver disease also have links to RLS. Celiac disease is severely under-diagnosed around the world.

So, just a friendly reminder of these potential secondary causes or worsening of RLS/PLMD and that treating these underlying conditions may improve your RLS/PLMD/quality of life.

7 Replies
Guitarpickin profile image
Guitarpickin

This is fascinating. Thank you for sharing. Fingers crossed that treating your CD will significantly improve your health and eliminate or minimize the RLS/PLMD. It’s exciting you have a clear path of treatment to try! Please keep us posted.

BoldMove profile image
BoldMove

I have Celiac and RLS. As you probably know, the established link is inability to absorb iron. However, in my case, adhering faithfully to a GF diet did correct my iron levels but had no noticeable to the intensity of my RLS. No one wishes I have a better answer than I do.

ircam2112 profile image
ircam2112 in reply to BoldMove

Thanks for the response. I haven’t set my expectations too high and appreciate you sharing your experience.

ircam2112 profile image
ircam2112 in reply to BoldMove

Did you notice any physical, psychological or mood changes?

BoldMove profile image
BoldMove in reply to ircam2112

Re Celiac: Only that I was disappointed to know I had it because of the learning curve of what non-grain items may have hidden gluten. Also the events that were safer to miss than participate in was a disappointment.Re RLS: I'm often tired, but here is how I circumvented much of it: I try for my time in bed knowing I have to get up and walk though I discovered standing is sufficient. I saved many simple chores for the middle of the night disturbances to compensate for the extra bedtime hour. I have night lights in the kitchen and other areas so I can see to get things done without disturbing my sleep/wake cycles beyond necessity. It works for me. I make sure I'm getting more B12 than necessary early in the day. It too seems to help me a bit.

Amrob profile image
Amrob

I recall reading that celiac disease is more common in the Irish and in those of Irish descent.

It would be interesting to know the prevalence of RLS/PLMD in those populations.

A two-minute search of Google came up with a 2007 study showing a prevalence rate of 2.8% amongst a study population of 2628 primary care patients in Ireland, however that seems low, even generally speaking.

ircam2112 profile image
ircam2112 in reply to Amrob

Yes, I agree. I usually hear that generally the percentage is closer to 10% but I think that may be “diagnosed + estimated undiagnosed” rather than “actual” as in the study. So, if that is the case, you’d expect closer to 10% with a study like this. It would be interesting to study the differences between different populations/cultures which may get us closer to causes. E.g.) is there a difference based on latitude > sunshine > vitamin D/melatonin?

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