Just out of hospital after falling and smashing my right thigh bone and hip 5 hour op and blood transfusions ,dreaded the thought of lying in bed with this curse ,when I went in I was coming off pramipexole from 018mg to 088mg but had to go backup to 018mg to cope and asked for tramadol which I got ,and it really helped till I got out of bed Took 2, 50mg tramadol and 018mg at night which worked ,so now I am out will cut the pramipexole till I get of it thank god for tramadol ,long road to recovery but I will get there ,God bless all fellow sufferers.
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auldreekie18
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Wishing you a speedy recovery from the thigh/hip operation. You are determined to get off Pramipexole and you will. Go slowly until you are ready to move around more. Tramadol definitely helps withdrawal symptoms. The blood transfusions may well have increased your ferritin and iron and that will also help.
What happened after Tramadol stopped working & how did you get off it? I always have a bit of an eye to the future as it’s hard enough to cope with this awful RLS now in my 70’s & I’m somewhat scared to say the least that some random, ignorant Dr will decide not to continue what I eventually find helps ( not yet found it! ) & takes me off it leaving me writhing helplessly. I remember my poor Mum phoning desperately during the night after an emergency admission to a care come age 86 when no one would give her what she was used to.
Yep! Fully up to speed with it all, thanks in large part due to this site. Currently trying Dipyridamole as per a recent post & a sympathetic GP willing to prescribe off licence
Thanks for offering & taking the time to reply. I honestly have read everything there is to read on the subject & weigh it all up, pros & cons for now & the future. I find all info invaluable. Anything new I read I consider which is why I am currently trying dipyridamole. It is very kind of you but honestly my full reply would be too long winded & serve no purpose. I expect some of what you have previously written I will also have found useful - though I haven’t seen your name until fairly recently so maybe you’ve changed your user name?Honestly though I take on board lots that others report.
I’ll report back at some point fair it soon the result of my trial oh dipyridamole.
No I haven't changed my username. I don't make many posts. I mainly reply to others. For example see my reply to Taz66 headed RLS Problem posted 7 hours ago. I assume then you have read the Mayo Clinic Updated Algorithm on RLS at Https://mayoclinicproceedings.org/a...
Yes I have read that before. Thanks. Hopefully there will be ongoing updates at some point ( though updates are time consuming for the writers to compile ) as we definitely haven’t ‘got there’ yet. I always have an eye to the future as we will all have to deal with this and potentially as yer unknown consequences of our treatment for all our lives, and especially when very elderly which is of concern to me.I have also emailed Dr Buchfhurer ( sorry spelling may be wrong ) in the past & received helpful replies.
I think one of the positive things is that people are now making more effort to try to solve the problem ( which is probably several problems? )
I used to have a day off a week so that when it stopped working I would not have withdrawal symptoms. It usually worked for about a year.Then tolerance occured. So I would take a month 's holiday from it and then it would work again.I did this for many years.Then it stopped working completely last August.I am now on morphine.I'm actually hoping that after a year I will be able to return to Tramadol. X
I’ve had RLS: for 20 years, for eight years tramadol worked… until it didn’t. Getting off of it was a year-long nightmare of withdrawal. I was on hydrocodone for 12 years after that and was recently switched by my doctor to Suboxone/buprenorphine. It was a miracle drug, no more withdrawal symptoms every five hours every day. But then the REAL miracle happened after praying almost every day for a cure for five years, I have, in fact, been cured of this absolutely dreadful malady that would keep me awake for 72 hours on a regular basis. Praying for five years might seem like a long time, but how long would any of us wait for God’s Grace. That is the true miracle… “… ask and it will be answered.“ I truly believed that the Suboxone/buprenorphine was the answer to my prayers, and for some it may very well be for a time. God‘s sovereign power and Love is bigger than any of us can imagine. John 3:16 - Proverbs 18:13. I believed in God, repented of my sins and was saved through the blood of my Lord and Savior Jesus Christ. Having been cured of Refractory RLS after 20 years was the greatest gift God has ever given to me… second only to forgiveness of my sins and eternal life. God bless all of you… there is no one here who can empathize more than I do with the suffering we go through. I have prayed-and will continue to pray-for all of you. John 3:36.
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