Channel 5 is legs

[Mikeca]

Hello I've been on forum before. But after watching channel 5 I just have to say again the source is in your bowels. Ibs, or small intestinal bacterial over growth. After 30 yeaRs I'm free of rls. My route to freedom was the sibo diet for bacterial over growth. See Dr Alison siebecker for food restriction diet. It took a few months to fully kick in. It was pure luck I found food and rls were linked. See your GP. If it works for you please spread the news.

[Joolsg]

Thanks for posting. It’s useful to know what works for people and different diets do seem to help a lot of people.

However, it won’t work for everyone.

Raffs has found a vegan diet has stopped his RLS, others follow a low fodmaps diet and others a low oxalate diet.

Really glad it has worked for you.

Jools

[Hidden]

Glad it works for you! I'm not sure who posted -- may have been you, but I remember reading a post talking about the connection between RLS and your bowels.

Question: if the source is your bowels/intestines, then why hasn't my neurologist (a specialist in RLS) mentioned this?

[Eryl in reply to Hidden]

Most doctors stick to theories learnt during their training period. The theory that our microbiome is so influential in our health is relatively new, and will take generations to be accepted into basic medical training.

[Graham3196]

Interesting. The SIBO diet might be better than the FODMAP diet. Perhaps we should all eat acronyms? I am going to compare the two.

[EveW in reply to Graham3196]

The SIBO diet advocates a lot of onion'y stuff and beans/legumes, because the idea is to feed all the good bacteria in the lower gut. Also use of prebiotics, such as inulin. All these thing are not good on the low fodmap diet. I did actually look at the SIBO diet and tried some stuff, but it made my RLS worse.

[Graham3196 in reply to EveW]

Thanks Eve. I think I will stick to what I know is working. I know that onions and garlic are not good for me so perhaps that's a guide to me having FODMAP RLS as opposed to SIBO RLS and Vegan RLS. THe reason I like the exclusion diet approach is that I expect to finish up with a list of things I can eat without a problem. Perhaps another list of never eat food and a third list of "are you feeling lucky, Punk" food.

I suppose its possible that the foods on the lists might change as I grow older so I need to be continuing with my food diary. My food diary becomes a bit scratchy when the good times are here. That's reasonable except when I get some RLS I dont have a good record of everything I ate for the previous three days. I can never remember everything I ate, even if its outside my diet, except if there has been a special ocassion.

[EveW in reply to Graham3196]

Hi Graham, I had been going on the "clever guts diet" by Dr Mosely in my comments that the SIBO diet would be high in some of the FODMAPS, but when I actually read the SIBO diet by Dr Alison Siebecker , it wasn't as bad re the FODMAPS as I thought it would be, so I take part of my previous comment back! As you and the others say, it is all to do with what works best for the individual, although there do appear to be common threads.

[Graham3196 in reply to EveW]

I think there is enough evidence that for some of us there is a connection between RLS and what we eat. I think we are the lucky ones because we can establish what the connection is and then obey it - most of the time.

[Eryl]

On the whole I agree. I still get occasional twitches, but don't all animals? Just watch your cat or dog sleeping. I have however completely eliminated the typical itchy/crawly feeling in my joints, which most rls sufferers complain of. I've done it with a reduced carbohydrate diet. My own diet, which I understand is close to a 'ketogenic diet'. My explanation of how it eliminates rls it that the itchy/crawly sensation is due to inflammation in the membranes in the joints caused by the high levels of blood sugar due to ingesting carbohydrates. The diet probably has affected my microbiome (gut bacteria) and that has probably had some effect.

[DicCarlson]

Website of Dr. Alison Siebecker siboinfo.com/