Hi, my mum as suffered from RLS for many years now and I have just had an opportunity to watch the Channel 5 documentary about RLS that my wife referred me too.
It as enlighten my understanding and gave me a glipse of what my mum goes through, as well as other sufferers, when she as an attack ( if I may call it that).
I now reading the information on the RLS Charity website of ways I can help and assist my mum, because of my love for her, to reducing the effects of the RLS attacks. I know at present time there is no medical cure or research being undertaken to find a permanent cure for you. All I can offer is to pray for you as I do for my mum for help with the RLS condition you suffer greatly from and distress it causes.
Thank you for your prayers. I hope that is not the case and more funding will be now considered to further medical research for hopefully a more permanent cure.
Sorry to hear you have to take medicines at this time to help allieve the worse of the symptoms. They do however tend to cause side effects and which sometime result in having to have additional medicine to allievate the side effects.
I have just spoken to my Wife (Glenys) and she as just joined to forum and will be checking when she is able which a blessing to me because she will be able to see the comments and more importantly for me is that you are praying for my mum.
LOVELY THOUGHTS JEREMY AND APPRECIATE THE PRAYERS, THERE IS MEDICINE TO HELP, DONT KNOW WYH THE PROGRAMME DID NOT OFFER THAT ADVICE
Thank you for your prayers and I will passed them on to my Wife (Glenys) who is currently away visiting her mum at this time and ask her to pass them on.
Regarding the programme maybe the production company who made it have to walk cautiously. For me, it was informative, by making me alot more aware of the suffering and distresses that RLS causes to the sufferers.
I pray and hope more research into a more permanent medical cure will be made because the public awareness as been informed and the 'powers that be' allocate more funding for further medical research.
Thank you for the advice. I am just so thankful for all the posts I have received and the advice that as been given so far so that I can be of help to my mum.
Watched the programme with my wife and granddaughter, my granddaughter walked away after 20 minutes or so but my wife watched all of it. They both got very upset by the programme and told me the reason being they realised what I was going through and found it really disturbing regarding the self hurt points made and worried what I would or could do as I often say that if I had a hammer I would smash my feet to pieces if I could just to stop it all.
Glad this was shown, maybe now we don't have to SUFFER IN SILENCE
I found the documentary very upsetting and distressing to see your love ones going through a RLS attack and it open my eyes to see what my mum must go through, which I admit where blinker, having only witness a severe attack of RLS recently. I admit I knew my mum had them but never actually witness it because I didn't really want to know which I am now very sorry for. I just hope I am given an opportunity to tell her how sorry I am for my neglect of my love for her.
I was sorry to hear of the effect it had on your love ones, words cannot express what you must be going through day in and day out. I just pray that a permanent medical cure can be found and I pray for your family.
I watched this programme, & compared with what these people are going through, my RLS is very mild. I can only hope that I don`t deteriorate & end up in the same predicament.
Am so glad to find your posts on RLS. My mum has had a bad time with it (3 to 4 years before) and was prescribed Gabapentin by her neurologist - which she hates as it made her superdrowsy and light-headed. Poor elderly lady(no 86 yrs of age) with weak legs & having to be super-careful in moving as such. The last couple of years saw a reprieve & very well managed in that a low dose of ibuprofen settles the problem. Having been a primary care-giver, dehydration is the main cause as she tends not to want to drink water (she has an overflow bladder which causes incontinence). If anything, on very warm weather, I would ask her to take a half cup of non-carbonated drink around 3 to 4pm (hottest time of day) and she never complained about twitching (do note that she is not diabetic). Regretably, the last 2 days, it has veered its head again-causing sleeplessness due to the sudden painful twitches. Have no choice but to start her on gabapentin today and hopefully with the isotonic drink will stop the twitching from getting bad. Please pray with me even as I start to research on new discoveries and sharings of others (printing your posts to encourage her that she isn't alone in this).
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