Documentary on RLS disappointing. - Restless Legs Syn...

Restless Legs Syndrome

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Documentary on RLS disappointing.

Hellabella profile image
5 Replies

Just watched Restless Legs Syndrome, programme and disappointed.

Thought at least we would hear from Specialists or Doctors, and/or the reasons people have it.

I did have something in common with one of the sufferers and that is it is 100 times worse at night.If I channelled the energy I could run Marathons (at night), but have Fibromyalgia which limits my walking.

Hopefully here might be a documentary with results of studies on RLS.

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Hellabella profile image
Hellabella
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5 Replies

Yes me too, to be honest I feel worse than ever . Thought they would have given us tips and help... 😩😩

Lullaby profile image
Lullaby

I agree... I was hoping that there would be a discussion about what causes us to have RLS and what is being done to find a "cure" ...The thing I did like and something people don't understand the huge effect it has on not only our lives but the fact that our families live with this condition too...I take Ropinerol to get some relief from mine...it sounds stupid I know but I actually look forward to the time of day that I can take my tablets because it can affect me anytime of the day or night...I suppose the program tonight at least shows us "sufferers" tat we are not alone and that there are lots of people around the country possibly suffering at the same time ...that's one of the things I think other than how it makes us feel it that u feel so lonely and isolated by it...

Hellabella profile image
Hellabella

I have had RLS for over 30 years ,and it has changed my life,thought at first it was part of my fibromyalgia,but seemingly not.

There is a product on the market that gives me relief for a few hours and it's called Magnesium Oil (Better You)in a spray, available on Amazon.

I spray it on my calf muscles and thigh muscles and rub in for 5 minutes to allow it to be absorbed,leaves skin a bit sticky but in my case relief for a short time.

Hope this helps someone.

RupertMac profile image
RupertMac

I agree Hellabella. Whilst I felt huge sympathy for the four sufferers they followed, I did think the producers pitched it very much at the dumbed down end of the spectrum.

Reality TV has driven changes in programme making which mean that documentaries are all about the human drama (witness the tweets last night which were mainly about the attitude of one of the sufferers' husband). No proper explanations of the syndrome, treatment available, where to go, progress made in understanding or even mention made of this excellent forum and the information on the RLS website.

Perhaps the best thing that can be said is that it raised the profile of the condition. It looks like there have been a lot of posts on here overnight from other sufferers and that is, I think, a good thing. As you say, perhaps someone will now make a proper documentary which takes a more objective, research and treatment based look at RLS.

in reply toRupertMac

Perfect description.

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