I found this site after watching the recent television documentary about RLS.
I thought it was so sad to see people in such agony and I could really relate to them, although my condition was not as severe I too could not sleep, suffered with memory loss, felt so ill I couldn't get up in the morning and yawned all day.
I have suffered for 14 years with the condition and it has got progressively worse. Tried the usual medications and had side effects ( constant urge to shop, weight gain and nausea ) I had heard the link between low iron levels and RLS but my GP said my levels were within the normal range ( 45 ) and just gave me iron tablets. I took these for years with no positive results , it came up slightly but felt no benefits. I was starting to get desperate as I felt so ill in the mornings but still had to get up to work and look after the family . I felt like there was something really wrong with me ( apart from the usual sleep problems and was at a low ebb) I saw my GP and begged him to refer me to hematology at the hospital , he said he would but doubted they would do anything for me .
AnywayIi got my appointment very quickly and they immediately gave me an iron infusion ( Ferinject - Ferric Carboxymaltose ) and said come back in 2 months.
I was not sure what to expect but as soon as the next day I started to feel better. I stopped waking up with that feeling of dread and illness and felt ok ( tired obviously but ok ) and withing the next few weeks an amazing thing happened and my legs started to improve. No pains, no jumpy legs watching TV and no waking in the night with leg pains and pacing the floors .
After 4 months I can honestly say the RLS has virtually gone away. I get the odd twitch and need to stand up and stretch while watching TV but nothing like before and certainly no pains. My iron levels are now in the 300s and I only need to get them checked every 6 months to make sure they are not going down again.
I am sleeping really well and although I do still wake I think this is more habit from the years of RLS as I have no pains or problems with my legs at night now . I am still taking 1mg of reQuip before bed but I am going to start weaning myself off this as I do not feel I need it now.
Anyway I just wanted to let other people know about this and hope it helps someone else.
Good luck !