Please see this "call to arms" from MEAction and follow the links. You can use MEAction as your organisation or the names of any ME organisations or forums that you are members of.
Please try this as it is very important and will have huge implications for the way the medical profession view this condition and therefore the treatment we are given.
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ukmsmi4
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Clicked on the agree button and must admit that the help from a grandchild treating this as a computer game that moves onto the next level once the secret is discovered was invaluable.
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Recruiting Patients for Gene Data Study with Nancy Klimas at Nova (*no travel necessary!*)