Gentle hello, how are we today?
I'm just wondering which guides/resources we've come across are proving most helpful, to both manage and treat Ramsay's disease (also known as SEID, ME/CFS) both for us and our practitioners?
Wondering if helpful for us to gather the best ones we know of here (in one place)?
The ones I'm conscious of, that (from my perspective) feel helpful until research sheds any more light are:
1). Guide from Dr Lerner (US)
2) Guide from Dr Smith (UK)
NB..mostly suggests very gentle pottering (...for us to adapt to our varying natural levels...because some of his ideas are way beyond most of us, yet the spirit and intention feels a relaxing one). Also recommends containing computer time eg say to 5-10 minutes at a time, because of energy costs of visual processing.
3) IOM clinician guide:
Do you know these, I wonder? Any others to add?
Warmest thanks for any input....and very good luck for all of us, first of all for the day itself...and also, gently going forwards, with figuring out our priorities for ourselves and any next steps with our practitioners.
Warmest wishes, RockRose