Kickstarter campaign on AllTrials continui... - Ramsays Disease

Ramsays Disease

568 members470 posts

Kickstarter campaign on AllTrials continuing efforts please share on social media

budgiefriend profile image
5 Replies

"AllTrials

kickstarting a campaign for Sense About Science because patients suffer when trials are withheld."

This issue affects all of us in terms of treatments, diagnoses, and medications. All scientific research trials need to be published instead of some information being held back so we don't see the whole picture.

justgiving.com/alltrials

Please copy and paste this link in your browser, to go to the AllTrials website kickstarter campaign and then hit the facebook and twitter and other buttons to share this on social media. Or donate to the cause if you can.

More work needs to be done by the team pushing for this to happen, and that is going to require money.

Written by
budgiefriend profile image
budgiefriend
To view profiles and participate in discussions please or .
5 Replies
Ian123 profile image
Ian123

If the battle is fought on a financial battleground, then it will be over before it has started

against the billions of multi national pharmaceuticals.

Public opinion against the bought political lobby choose how and where you fight.

budgiefriend profile image
budgiefriend in reply toIan123

The kickstarter campaign is for funding to enable Ben to meet with the companies who have done research trials in person, and NOT as their guest, so he can show them the WHO recent call for all trials to be published, and convince them that it is going to be best for their company's image to move into alignment with those who have already agreed to publish past trials as well as to do so with all future ones. He is doing this on a very limited budget, and needs funding to help him meet that limited budget. It's not a huge amount, considering the work he is doing. It is not for his personal use or anyone else's

That's how I understand it and why I posted it.

A good video of his that explains what he is doing and why.

There are several more on YouTube by him that are excellent, also

youtube.com/watch?v=Kto5vui...

Stormchaser profile image
Stormchaser

WHO giving this guy a little support when he is supporting their call ?

Peter-J profile image
Peter-J in reply toStormchaser

Little guy fighting back should have all the support we can raise opportunity goes by Big Pharma win again calling the plays same as they always have.

budgiefriend profile image
budgiefriend in reply toStormchaser

I can't answer that. I have only read about the issue and I have difficulty remembering all details. I don't know if WHO have funding for his project, or whether their funds can be used for this purpose. You would have to ask him. You can go to his site or communicate with him on Twitter for more info. The WHO can call for all trials to be made public, but it is up to individual research bodies to decide whether they will publish past trial information. This is vital, and in my mind, it could save tens of thousands of lives, as well as provide information about which treatments should receive continued funding for more research replication, etc.

Not what you're looking for?

You may also like...

Keep psychiatry out of ME research

Please consider signing this petition...
ukmsmi4 profile image

Update on Rituximab

A proportion of the test group have seen lasting improvement, so not a cure all but B cell...
Ian123 profile image

Link to Audio, video, powerpoint and transcript of Dr Alastair Miller's lecture on ME/CFS on May 5th

Hi all, This seems to be a good indicator of current NHS thinking re. ME. Probably most helpful for...
MrsSowester profile image

Recruiting Patients for Gene Data Study with Nancy Klimas at Nova (*no travel necessary!*)

Join the M.E Gene Study at the Institute for Neuro Immune Medicine, Nova Southeastern University....

National Audit Office

Having a neurological condition the quality of care will not have escaped notice, well the good...
Ian123 profile image

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.