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Ramsays Disease

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Nobody is able to diagnose my disease

Hi I am a 27 years old male from India and one day in the month of nov 2018 suddenly i developed a swollen supraclavicular lymph node post which i developed...

Hi I am a 27 years old male from India and one day in the month of nov 2018 sud...

•6 years ago

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Virus and M.E

Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a complex and controversial clinical condition without having established causative factors....

Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a complex and con...

•6 years ago

Insights into M.E

The pathogenesis of ME/CFS, a disease characterized by fatigue, cognitive dysfunction, sleep disturbances, orthostatic intolerance, fever, irritable bowel...

The pathogenesis of ME/CFS, a disease characterized by fatigue, cognitive dysfun...

•6 years ago

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Biopsychosocial Model

Considering evidence of harm and distress from an unevidenced illness model. https://www.tandfonline.com/doi/full/10.1080/09638288.2018.1481149

Considering evidence of harm and distress from an unevidenced illness model. htt...

•6 years ago

BMJ

Continued missteps at the BMJ regarding research on children with CFS...

Continued missteps at the BMJ regarding research on children with CFS...

•6 years ago

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Exercise Issues

Montreal conference report https://www.healthrising.org/blog/2018/05/16/montreal-me-cfs-i-metabolism-the-main-matter-more-exercise-issues-plus-bad-brain-motor/

Montreal conference report https://www.healthrising.org/blog/2018/05/16/montreal...

•7 years ago

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Groundbreaking Research

Epstein-Barr was discovered in 1966 by Anthony Epstein and Yvonne Barr. It was the first human virus shown to cause cancer. The sequencing of its large...

Epstein-Barr was discovered in 1966 by Anthony Epstein and Yvonne Barr. It was...

•7 years ago

Energy Production

Skeletal muscle fatigue and post-exertional malaise are key symptoms of Myalgic Encephalomyelitis ( ME/CFS). We have previously shown that AMPK activation and...

Skeletal muscle fatigue and post-exertional malaise are key symptoms of Myalgic ...

•7 years ago

Reanalysis of the PACE trial

A large-scale, government-funded trial, known as PACE, claimed psychotherapy and exercise helped the estimated 250,000 sufferers of the devastating illness,...

A large-scale, government-funded trial, known as PACE, claimed psychotherapy and...

•7 years ago

Evidence and Psychiatry

DSM is a manual for Psychiatrists this video looks at the evidence or lack of it that supports making a diagnosis....

DSM is a manual for Psychiatrists this video looks at the evidence or lack of it...

•7 years ago

Microbiome

Myalgic encephalomyelitis (ME)/chronic fatigue syndrome (CFS) (ME/CFS) is a disabling and debilitating disease of unknown aetiology. It is a heterogeneous...

Myalgic encephalomyelitis (ME)/chronic fatigue syndrome (CFS) (ME/CFS) is a disa...

•7 years ago

Cytokine Signature

Tests after exercise reveal differences between healthy controls and patients....

Tests after exercise reveal differences between healthy controls and patients......

•7 years ago

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Infection Related

ME/CFS is a challenge for the patients, for medical research and ethics, for all of public health, and for society. The intensified hunt for scientific...

ME/CFS is a challenge for the patients, for medical research and ethics, for all...

•7 years ago

Autoimmune / Metabolism

A talk by Dr Olav Mella which has subtitles available on the right hand side of the bar at the bottom of the screen. Used the pause button quite frequently as...

A talk by Dr Olav Mella which has subtitles available on the right hand side of ...

•7 years ago

White Blood Cells

A new method of communicating that pathogens are in the system and also adds to Naviaux et al cell danger response ( Dauer State)...

A new method of communicating that pathogens are in the system and also adds to ...

•7 years ago

Support Dr Sarah Myhill

We want people who have been harmed by PACE to write in support of this complaint. You are free to use the PACE patient support letter at the end of the...

We want people who have been harmed by PACE to write in support of this complain...

•7 years ago

Lymphocytes

Measuring clinical symptoms against lymphocyte levels as a marker for severity....

Measuring clinical symptoms against lymphocyte levels as a marker for severity.....

•7 years ago

Time for Unrest

A new film sheds light on a condition that is largely ignored. Nathalie Wright reports on the struggles patients face to be taken seriously by doctors...

A new film sheds light on a condition that is largely ignored. Nathalie Wright r...

•7 years ago

New Start

Research into this debilitating disease has a rocky past. Now scientists may finally be finding their footing....

Research into this debilitating disease has a rocky past. Now scientists may fin...

•7 years ago

#PACEtrial

An interview with Dr David Tuller conducted by a severely ill patient http://anilvanderzee.com/david-tuller-and-the-space-cake-eaters/

An interview with Dr David Tuller conducted by a severely ill patient http://ani...

•7 years ago

Happy Hollidays

My best wishes for everyone but especially for those who's health prevents them taking part in activities during this time of year. May the coming new year...

My best wishes for everyone but especially for those who's health prevents them ...

•7 years ago

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Muscle Dysfunction

One of the primary symptoms of ME is generalized abnormal muscle fatigue that occurs after relatively mild activity. Fatigue can be defined as a progressive...

One of the primary symptoms of ME is generalized abnormal muscle fatigue that oc...

•7 years ago

NICE Guidelines

Minutes of the meeting : Forward ME Group with Prof Mark Baker http://www.meresearch.org.uk/news/forward-me-group-minutes-31st-october-2017/

Minutes of the meeting : Forward ME Group with Prof Mark Baker http://www.merese...

•7 years ago

Assessing Recovery

There are unique methodological challenges to studying and assessing recovery in myalgic encephalomyelitis and chronic fatigue syndrome. This study explored...

There are unique methodological challenges to studying and assessing recovery in...

•7 years ago

Rituximab

The Rituximab saga began in 2004 when two oncologists noticed that Rituximab – a B-cell depleting drug often used in cancer – not only cured one of their...

The Rituximab saga began in 2004 when two oncologists noticed that Rituximab – a...

•7 years ago

Severe M.E

This account of events is read from sound cloud which is a welcome relief for those who struggle with cognitive issues....

This account of events is read from sound cloud which is a welcome relief for th...

•7 years ago

BMJ Best Practice

The article is behind a paywall but apparently marks a huge leap forward in guidance on ME/CFS for medical practitioners....

The article is behind a paywall but apparently marks a huge leap forward in guid...

•7 years ago

Gluten ?

Among the many specialists kept gainfully employed by this disease are gastroenterologists attempting to find diets and medication which can be tolerated by...

Among the many specialists kept gainfully employed by this disease are gastroent...

•7 years ago

Brain Matters

Updating earlier research that has presented evidence of changes occurring with brain composition and volume, using cutting edge technology this research paper...

Updating earlier research that has presented evidence of changes occurring with ...

•7 years ago

Special screening of 'unrest' with expert panel hosted by Uni of Sheffield

https://www.eventbrite.co.uk/e/unrest-screening-plus-qa-tickets-39136536434

https://www.eventbrite.co.uk/e/unrest-screening-plus-qa-tickets-39136536434

•7 years ago

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