Please ask your MP to attend the APPG on M... - Ramsays Disease

Ramsays Disease

567 members470 posts

Please ask your MP to attend the APPG on ME Wed May 11th

ukmsmi4 profile image
10 Replies

If you have not already done so please ask your local MP to attend the All-Party Parliamentary Group on ME awareness group's drop in session on Wednesday May 11th. This will hopefully help raise awareness of the condition and it's lack of support amongst our MP's who are ideally placed to do something about it.

You can do this by using the template letter provided by Action for ME as per this post

facebook.com/actionforme/ph...

It's easy enough to do, must be because I have, and the more we can raise awareness the better so please share and encourage as many people as you can to help. Hope you feel up to giving it a go.

Good luck and Gentle hugs to all, Margaret.xx

Written by
ukmsmi4 profile image
ukmsmi4
To view profiles and participate in discussions please or .
10 Replies
Theresa60 profile image
Theresa60

Really helped having a search thing for finding my MP's email address sent though.

Ian123 profile image
Ian123

Used the template letter and asked, in fairness my MP has responded when I have raised matters previously so fingers crossed.

CheshireKatz profile image
CheshireKatz

Rather fortunate in MP sending a representative along on last APPG committee meeting - some interest if not an appearance is praiseworthy.

Jonesbones profile image
Jonesbones

Feeling rather smug already done this, something of a first when late and forgotten are my middle names.

pandemic profile image
pandemic

Confidence in politicians doing the right thing in as short supply as my energy but no harm done in giving it a go and asking for some representation.

ukmsmi4 profile image
ukmsmi4 in reply to pandemic

Ha ha, very true, me neither.  Politicians, especially true blue ones are not my favourite people, especially at the minute.

But I always think if we don't keep up the pressure then why should we expect others to do it on our behalf.

Ian123 profile image
Ian123

Had a reply back that Parliament might not be sitting at the time but it has been put in the diary and will pop in if possible. Fair enough I thought.

CheshireKatz profile image
CheshireKatz in reply to Ian123

Parliament may be prorogued (not sitting but sounds more painful) in run up to Queens speech apparently.

ukmsmi4 profile image
ukmsmi4 in reply to Ian123

So that means they will have no day job to be getting on with and will have no excuse for missing it then . . . ?

Ian123 profile image
Ian123 in reply to ukmsmi4

MP attended and forwarded a copy of the recent report that was provided as information on the subject. Taking report along to next support group meeting.

You may also like...

Request to sign a petition to the government for funding for ME research

collectively we can raise awareness of our pain. \\" Please sign and share as much as you can....

Can we have a poll or info gathering on how we are treated as Fibro/ME patients in the UK?

disinterest, and lack of options except the CBT/GET ones. Is there some kind of group action we can...

New part of lymph system discovered in brain...

oimmune-diseases I personally experience an awareness of viral activity/immune...

Recruiting Patients for Gene Data Study with Nancy Klimas at Nova (*no travel necessary!*)

hxWXY2V2stbW8/view?pli=1 Please pass this information on to EVERYBODY you know with M.E. as Nancy...

Helpful guides for us and our practitioners?

Gentle hello, how are we today? I'm just wondering which guides/resources we've come across are...