This is on behalf of a fellow ME sufferer on the fibromyalgia HU forum, but as an ME and fibromyalgia sufferer I am also requesting your assistance too.
"I must have a pea in my head today as as tired as I am I do not want to lie down to this horrible illness. The way medicine and attitudes to unseen illnesses is approached needs to change dramatically and Fibromyalgia is no different. Can I ask you all to please sign the petition (uk residents only atm) and hopefully collectively we can raise awareness of our pain. "
Please sign and share as much as you can.
Many thanks.
Margaret.xx
Written by
ukmsmi4
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The current annual budget for biomedical research works at roughly £1 per patient per year - an increase from such humble beginnings cannot be beyond budgets.
Government have placed responsibility for research funding with the Medical Research Council when asked previously more pressure on them can do no harm in asking again.
Who do we put pressure on though, the government who are supposed to represent us or the Medical Research Council, who personally I know nothing about?
I will join in not knowing where pressure produces results as my expectations are limited by previous history parliament.uk/business/publ... a political hot potato passed around.
I have even heard the money wasted on the PACE trial quoted as an example of funding generosity and the bitter irony of that cannot be understated for all concerned with moving research forwards.
I take your point. But the problem is such a large proportion of sufferers are bedbound or are so severely affected that even small amounts of effort and concentration like that is very difficult for them. Lets face it everything is so much harder for us. And the really sad thing is when the psychobabble brigade use that against us on the few occasions when we do raise the energy to campaign on our own behalf. They conveniently forget the sad truth is we are so neglected and treated so appallingly badly that we have very few people to fight on our behalf so we have no choice but to do so ourselves, despite, and I sometimes feel because of, the huge drain it has on our reserves.
For that reason I feel we have to put some effort into not only signing ourselves but persuading as many non ME people as possible to sign as well.
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