Assessing Recovery

[Onceagain]

There are unique methodological challenges to studying and assessing recovery in myalgic encephalomyelitis and chronic fatigue syndrome. This study explored these challenges through interviewing 13 physicians who treat myalgic encephalomyelitis and chronic fatigue syndrome. Our deductive thematic analysis produced four themes to consider when approaching recovery: lifespan differences in the illness experience; the heterogeneity of myalgic encephalomyelitis and chronic fatigue syndrome—case definitions, etiological stance, and misdiagnosis; patient follow-up and selection bias; and assessment logistics. We discuss how researchers and clinicians can use these considerations when working with patients, drafting recovery criteria, and interpreting treatment outcomes.

journals.sagepub.com/doi/ab...

[Theresa60]

Recovery would allow blood donation which at this time it does not even should a person feel well enough a mandatory ban has been in place in the uk since 2015.

[Bellated]

See another person with ME and I can tell they are suffering why can't doctors look and listen the same way instead of all this difficult diagnosing or knowing what not ill is

[CheshireKatz in reply to Bellated]

My thoughts exactly if we removed CFS as a diagnosis then classic Ramsay ME has simple diagnostic criteria and objective tests it's only when the waters are muddied with unknown causes of fatigue that the psychobabblers have any input