Posts - Ramsays Disease | HealthUnlocked

Ramsays Disease

567 members • 470 posts

All posts for April 2015

What does that mean

Defining words can change with illness severity - fatigue can be anything from tired onto mental and physical paralysis, what we mean by a word will often need...

Defining words can change with illness severity - fatigue can be anything from t...

•9 years ago

Act Up for M.E.

Myalgic encephalomyelitis (ME) is a debilitating, neuroimmune disease affecting an estimated one million men, women and children in the U.S. It has been...

Myalgic encephalomyelitis (ME) is a debilitating, neuroimmune disease affecting ...

•9 years ago

Vitamin B12

Response to Vitamin B12 and Folic Acid in Myalgic Encephalomyelitis and Fibromyalgia Björn Regland*,Sara Forsmark, Lena Halaouate, Michael Matousek, Birgitta...

Response to Vitamin B12 and Folic Acid in Myalgic Encephalomyelitis and Fibromya...

•9 years ago

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Care Assessments

The UK guidelines are contained within NICE 2007 http://www.nice.org.uk/guidance/cg53/chapter/1-recommendations members in Scotland have Good Practice...

The UK guidelines are contained within NICE 2007 http://www.nice.org.uk/guidance...

•9 years ago

Kickstarter campaign on AllTrials continuing efforts please share on social media

"AllTrials kickstarting a campaign for Sense About Science because patients suffer when trials are withheld." This issue affects all of us in terms of...

"AllTrials kickstarting a campaign for Sense About Science because patients suff...

•9 years ago

Do I Have ME/CFS?

Almost everyone experiences fatigue from time to time, but for at least one million U.S. adults, teens and children, the fatigue is crushing, unrelieved by...

Almost everyone experiences fatigue from time to time, but for at least one mill...

•9 years ago

This article is so clear and poignant. I recommend sharing it.

Written by Jeannette Burmeister's husband about the contrast between attitudes of people toward his hip replacement surgery and towards her severe ME...

Written by Jeannette Burmeister's husband about the contrast between attitudes o...

•9 years ago

Lost !

Can you help me find CFS,SEID,ME,Ramsays Disease on the neuro index http://www.ninds.nih.gov/disorders/disorder_index.htm I have tried and now it's driving me...

Can you help me find CFS,SEID,ME,Ramsays Disease on the neuro index http://www.n...

•9 years ago

Article in The Lancet

I don't know what to think about this. Maybe those of you who have political insight and like a spy or detective challenge will have ideas....

I don't know what to think about this. Maybe those of you who have political ins...

•9 years ago

A petition you might want to consider signing

https://www.change.org/p/this-morning-chief-executive-itv-this-morning-public-live-apology?recruiter=33652906&utm_campaign=signature_receipt_twitter_dialog&utm_

https://www.change.org/p/this-morning-chief-executive-itv-this-morning-public-li...

•9 years ago

Excellent, detailed, article on Stanford Study on Immune Problems

This is a long, detailed, and fascinating article. I have not yet managed to read it all. But well worth it even if you have to read in small increments....

This is a long, detailed, and fascinating article. I have not yet managed to rea...

•9 years ago

The thorny realities of 'pacing' for those who live alone

I understand the concept of pacing. I think it is the best thing we can do to keep from constant flareups and boom and bust cycles. But it requires certain...

I understand the concept of pacing. I think it is the best thing we can do to ke...

•9 years ago

Spoon Theory

Sharing this with all that understand http://www.butyoudontlooksick.com/articles/written-by-christine/the-spoon-theory/

Sharing this with all that understand http://www.butyoudontlooksick.com/articles...

•9 years ago

WHO important call for all clinical trial results to be made public

I just got this link to a website with the news item in my emails. This is a very important move on the part of the World Health Organisation....

I just got this link to a website with the news item in my emails. This is a ver...

•9 years ago

Post Exertional Malaise

Post-exertional malaise a defining, compulsory and cardinal feature for diagnosis under most current criteria. The term "malaise" defined by wikipedia as: a...

Post-exertional malaise a defining, compulsory and cardinal feature for diagnosi...

•9 years ago

The American Institute of Medicine report on redefining ME/CFS - they suggest a different new definition.

I cried when I read the first draft of this report because it represents the first real shift in understanding of the what we call Ramsay's Disease on this...

I cried when I read the first draft of this report because it represents the fir...

•9 years ago

Cytokines in Muscle Fatigue

Research stuff...

Research stuff...

•9 years ago

Rituximab

Finding that some patients with Hodgkins Disease and CFS improved their CFS symptoms after Rituximab immunomodulation by B cell depletion...

Finding that some patients with Hodgkins Disease and CFS improved their CFS symp...

•9 years ago

How important is a name

http://www.medicalnewstoday.com/articles/291511.php

http://www.medicalnewstoday.com/articles/291511.php

•9 years ago

Info from the ME Association about the New Social Care Act

http://www.meassociation.org.uk/2015/04/new-social-care-act-comes-into-force-today-and-we-have-a-leaflet-to-explain-how-it-might-affect-people-with-mecfs-1-apri

http://www.meassociation.org.uk/2015/04/new-social-care-act-comes-into-force-tod...

•9 years ago

Public lecture by Dr Alastair Miller, 5th May. 'Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome: Not Just Tired All The Time!'

Just letting you all know about this lecture coming up in Gresham College, London in May, it's 1pm so probably a bit early for me, but hoping it'll be recorded...

Just letting you all know about this lecture coming up in Gresham College, Londo...

•9 years ago

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