May is PSP Awareness month in the UK and n... - PSP Association

PSP Association

9,931 members11,751 posts

May is PSP Awareness month in the UK and now, in many of the US States

daddyt profile image
14 Replies

While so much needed attention is focused on Covid-19 as it should be, lets not forget the reason why we're here on this forum... PSP-CBD. Wouldn't it be wonderful if 2020 was the year for cure...

Tim x

Written by
daddyt profile image
daddyt
To view profiles and participate in discussions please or .
14 Replies

Maybe the medical establishment in the USA will become aware of it. Would be nice.

in reply to

Yes Jeff that would be wonderful. In the beginning of mom's battle with PSP l felt absolutely rediculous (& inadequate) trying to explain PSP to medical personnel who had never heard of it. Hopefully it is better known now. Sending hugs... Granni B

in reply to

Larry’s first neurologist didn’t diagnose anything for the first year and a half. Not a clue as to what was going on. I had to go see another neurologist to get an answer.

daddyt profile image
daddyt in reply to

Still... to this day, there are many in the medical profession who have no idea what PSP is. Guess we'll have to shout a little louder.

Tim x

in reply todaddyt

I had to explain it to a lot of medical people.

I never heard of PSP before Larry got it or CBD and MSA. Lewy body disease I had heard about.

Kevin_1 profile image
Kevin_1

You are unstoppable Tim! :)

Strength to you and thanks for reminding me.

Hugs

Kevin

daddyt profile image
daddyt in reply toKevin_1

I don't think I'm unstoppable, but I will keep trying until I can't. Be kind to yourself during this time.

Tim x

Kevin_1 profile image
Kevin_1 in reply todaddyt

Thanks Tim

:)

SewBears profile image
SewBears

I’ve heard that Covid-19 can mask itself by showing symptoms of having had a stroke. Scientists are researching brain behaviors as a result of the virus. I’m hoping that they discover something that could help them solve some brain degeneration issues while looking for a vaccine/cure. One can only hope!

daddyt profile image
daddyt in reply toSewBears

HOPE... matters.

Tim x

Nanny857 profile image
Nanny857

It certainly would Tim, 🤞🙏💕

daddyt profile image
daddyt in reply toNanny857

Wouldn't it though.

Tim x

I love your balloons, very creative. Thank you Tim for all you do to share factual information about PSP with your special brand of humor. Sending hugs... Granni B

daddyt profile image
daddyt in reply to

Oh... you mean timwit :)

Tim (wit) x

Not what you're looking for?

You may also like...

May Is PSP Awareness Month

For those on FB Never mind Waldo, where in the world is Harley? May Is PSP Awareness Month...
daddyt profile image

This is PSP Awareness Week in the UK

PSP Awareness Week - Ice Cream Challenge PSP is a rare neurodegenerative disease in the same...
daddyt profile image

Closure of the eyelids in PSP

Hello I'm a new member. My wife has been living with a genetic form of Frontotemporal Dementia for...
crwban profile image

The story of PSP and Tom

My Dad was diagnosed with PSP 14 months ago after 4 years of being incorrectly diagnosed with early...
Ang_ross profile image

Moderation team

HelenPSPA profile image
HelenPSPAAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.