My daughter, Becca, is running in the London Marathon for PSP next Sunday.
My father, Ray, suffered with PSP and passed away 7 years ago. He lived with us at home, (myself, husband and 3 children). He was a very much loved member of the family and known as 'Grumps' to many.
When dad was alive we attended our local PSP Support Group which was held at Shrewsbury, in those days led by Maggie Rose and now by Kat Haines. We found these group sessions invaluable, a absolute lifeline. We have continued to attend and support people (hopefully) with any advice we have been able to give. We were there this Thursday armed with Muffins, cakes and goodies for all, thanks to all those who took said goodies and gave us such generous donations towards Becca's sponsorship.
As a family we do as much as we can to raise awareness and much needed funds for the association. We have done many tea parties, coffee mornings, candle parties. As some of you lovely people on here may remember last year Becca ran a half marathon, her first race and I, along with the family, did a White Water Raft in the Canadian Rockies!!! Thank you to all those who supported us last year.
This disease is still present within our family as Dad's cousin has also been diagnosed with this wicked disease, living with it, be a little more removed, is no easier the second time around.
Due to the Marathon being such a large event and it being Becca's first she has written a on line blog following her journey, beccaspspmarathon.blogspot.... which we thought some of you may like to read and see how she has got to this point. I hope you can all cheer her and others on next Sunday, we believe there are over 100 runners for PSPA!