PSP Association
5,155 members7,164 posts

Mums gone!

Mum died 21st December and we had her funeral yesterday. Mum donated her brain for research into PSP and donations for the PSPA was £200.

I was in total shock until the funeral but glad i had the opportunity there to raise awareness of PSP. I will continue to do so and me and my 3 sons will be doing Hadrians Wall June 1st next June.

A horrible horrible disease that robbed me of my Mum. I believe she started with it 8 yrs ago but had been trying to get a diagnosis for 5 years...we got it this year!!!

She was taken into hospital with a water infection, which set the dementia off and she went down very quickly from there. I brought her home to die which she did peacefully.

My heartfelt thanks to PSP Association for being my support and guide, to Health Unlocked for being able to share with you all and for all of you, my friends for going theough this with me and sharing.

Having looked after Mum for 8years I am lost and left with a big hole inside and it hurts so much. Even though you know what is going to happen it was such a shock.

Love you Mum always xxxx

12 Replies

hi jan k,

im so sorry to here about the sad loss of your mum

to this horrible disease my throughts are with you all

at this sad time, i know my time will come i dont know

when but im prepaired for it (i think) but we will see i will

keep ffighting it right till the end, at least the suffering is

over for your mum but it will take a while for you and the

rest of the family to come to teams with your loss of her

i know its hard it was hard for me when i lost my mum and

dad and i still dont think there is a day go by when i dont

think about them and i shead a little tear my best wishers

go out to all your family at this sad time and i hope you

have a much better 2012,

kind regards

ray xx


Hi Jan

My thoughts are with you and your family at this sad time.

We all have a brave hard fight with this dreadfull disease. At least your mum is now at peace.

I lost Ray in April 2010 at the age of 58 to PSP, there are good days and bad days. The longer time goes on, the more good days I have and I hope you will feel the same. I never thought that life would go on but it does and the good memories wipe out the nasty ones of PSP. When I read the article we did which was published in August 2008 in The Daily Mail, I have to pinch myself as it seems so surreal now.

May God Bless you and give you the strength to cope and carry on.

Lots of Hugs to you.

Wishing you a peaceful 2012.

Love kisses and hugs.



hi Jan

at leas it if over for your mum but what a dreadful time 4 it to happen just b4 Xmas

but we all know we have to go some time and i guess your mum knew it too

lots off love to you and your family

you will have to be strong - but it is not easy when you mum was so loved by you




Thanks all of you that really helps me because I know you understand! xx


All the words have been said in above, I just wish to add my caring thoughts to you all in this sad time



Love and best wishes to you and your family. Please accept sincere condolences on the loss of your dear mum. We all think that we have plenty of time on this earth, but sadly each day brings it a little nearer to when we must say goodbye. PSP is a daily reminder that we shall lose a loved one and I pray for all of you out there who have already experienced it. My hubby struggles each and every day like everyone with this cruel disease, and it is great to hear of the unselfish decision by your mom to donate her brain to research in the hopes that one day soon treatment or a better still, a cure may be found.

God bless and stay strong.

Love..............SuzieQ xxxx


my husband has been diagnosed 17th december he is 52 he is very poorly in hospital transferred to papworth yesterday he has alot of trouble breathing my heart and thoughts go out to you and your family take care be strong x


Dear Jan,

I'm so sorry for the loss of your Mum, but glad the end was peaceful. I hope you find comfort from memories of happier times.

Much love

Kathy xx


Dear Jan

I'm so sorry for your loss. It's amazing how much we can be shocked by it, even though it's not unexpected.

Keep coming back here- I've found this site a great support since my mum died in July.

All best wishes



Thanks Fiona..I will. I still need you all!! xxx


So sorry to hear of your loss. My dad died from PSP 3 years ago he was 68. I miss him and my mum so much. Try to remember the good times. My thoughts are with you.


HI Jan,

I am so sad to hear of your loss of your Mother.

I am sending you love, strength, and peace. take care.



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