Mum died 21st December and we had her funeral yesterday. Mum donated her brain for research into PSP and donations for the PSPA was £200.
I was in total shock until the funeral but glad i had the opportunity there to raise awareness of PSP. I will continue to do so and me and my 3 sons will be doing Hadrians Wall June 1st next June.
A horrible horrible disease that robbed me of my Mum. I believe she started with it 8 yrs ago but had been trying to get a diagnosis for 5 years...we got it this year!!!
She was taken into hospital with a water infection, which set the dementia off and she went down very quickly from there. I brought her home to die which she did peacefully.
My heartfelt thanks to PSP Association for being my support and guide, to Health Unlocked for being able to share with you all and for all of you, my friends for going theough this with me and sharing.
Having looked after Mum for 8years I am lost and left with a big hole inside and it hurts so much. Even though you know what is going to happen it was such a shock.
Love you Mum always xxxx
Written by
Jan_K
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My thoughts are with you and your family at this sad time.
We all have a brave hard fight with this dreadfull disease. At least your mum is now at peace.
I lost Ray in April 2010 at the age of 58 to PSP, there are good days and bad days. The longer time goes on, the more good days I have and I hope you will feel the same. I never thought that life would go on but it does and the good memories wipe out the nasty ones of PSP. When I read the article we did which was published in August 2008 in The Daily Mail, I have to pinch myself as it seems so surreal now.
May God Bless you and give you the strength to cope and carry on.
Love and best wishes to you and your family. Please accept sincere condolences on the loss of your dear mum. We all think that we have plenty of time on this earth, but sadly each day brings it a little nearer to when we must say goodbye. PSP is a daily reminder that we shall lose a loved one and I pray for all of you out there who have already experienced it. My hubby struggles each and every day like everyone with this cruel disease, and it is great to hear of the unselfish decision by your mom to donate her brain to research in the hopes that one day soon treatment or a better still, a cure may be found.
my husband has been diagnosed 17th december he is 52 he is very poorly in hospital transferred to papworth yesterday he has alot of trouble breathing my heart and thoughts go out to you and your family take care be strong x
So sorry to hear of your loss. My dad died from PSP 3 years ago he was 68. I miss him and my mum so much. Try to remember the good times. My thoughts are with you.
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