A Proffesional's Guide to Corticobasal Degeneration

[DenB]

For anyone that doesn't belong or doesn't have access to the PSPA magazine, ' PSP Matters', I would like to bring attention to the fact that the magazine does include matters relating to CBD and they have now launched a 'Proffesional's Guide to CBD'.

They have also put all CBD specific information in its own section called, CBD Matters.

They launched the guide in October and sent out nearly 500 copies to health and social care Proffesional's.

The PSPA are working on a version of the guide specially for the people living with CBD, their carers and families which will be available from April 2019.

The above guide, the Proffesional's one, can be downloaded on line. Just type in the above title.

I found it really informative, as is the PSPA magazine, I just wish I had all this to read when my husband was first diagnosed but I am sure it will now help a lot more people and carers who are on a journey with CBD.....doctors too I hope!

Love to all

Denise X

[dollydott]

Just received my copy today.

Very informative

Really pleased that the PSPA has decided to do this

Lynda 😊

[DenB in reply to dollydott]

It's brilliant isn't it. It 's the world's first Professional guide to CBD!

X

[dollydott in reply to DenB]

Yes its made me so happy. X

[raincitygirl]

Brilliant. I'm going to be sure to get this to our PCP. No more ignorance for others!

Thanks Denise.

XX Anne G.

[DenB in reply to raincitygirl]

I was so excited to get this information out there to everyone!

X

[honjen43]

Thanks, DenB! Will have a look at this.

Hugs

Jen xxx

[DenB in reply to honjen43]

My pleasure!

X

[bazooka111]

Thank you so very much for sharing this information!!

[DenB in reply to bazooka111]

So glad that I could!

X

[Confusedandlost]

A big thank you

[DenB]

Exciting isn't it!

X

[Yve2018]

I have CBD. The PSPA sent me a copy of The Proffesional’s Guide to CBD, for my GP, to help him understand this condition. He admitted that until I was diagnosed he was not aware of CBD, or that there are diseases that have no treatment or cure, in this day and age. I am fortunate in that I have a wonderful Neuro Nurse that visits me at home each month, who liaises with my GP and Consultant Neurologist at the Hospital. I am in the initial stages, at the moment, but daily I find things that are getting more difficult. Also, what I call, my melt down days. When all I can do is sleep. I also have a wonderful husband that helps me and puts up with the mood swings that I have no control over and feel really guilty for, once they are over. SO, all in all I am lucky and intend to beat this damn disease.

Love Yx

[DenB]

Hi, my husband also has a neuro nurse that visits every few weeks and liaises with the consultant Neuropsychiatrist and our GP.

She has been a rock for me but unfortunately, is due to take early retirement in a couple of months. Who knows if she will be replaced.

I will miss her input and caring nature so much. There isn't anyone else that we have much contact with these days except the lovely people at the hospice.

Lots of love to you

Denise x

[Katiebow in reply to DenB]

Horrible when a trusted professional leaves and you are left to battle on your own or the replacement doesn't offer the same support. This happened a couple of times to us and it makes you realise how important good professional support actually is.

Kate xxx

[Skye04]

Thank you for your information Denise...I will definitely download and read it..My sister was diagnosed with CBD in December...

[Dadshelper]

I read the online version and it's very informative. I see a lot of what Dad went through talked about in the article. I'd like to point out you can download it as PDF, print it out for future reference or taking along to a doctor appt. This ability to download it is really useful for our non-UK members!

Ron