My husband (68) was diagnosed with PSP November 2015 (it was neurologist #7-ugh!) but was diagnosed with Parkinson's-like symptoms since 2012. He has started to deal with the double vision, fogginess, falling, some trouble swallowing (at times), constipation, and other PSP related issues. He has so much pain to the back of his right leg (hamstring/inner thigh area). It is in one spot and the pain is unbearable! The pain is always on his mind and he gets some relief from it when he is laying in bed. We have seen a chiropractor, tried acupuncture, injections (spine L4/L5), massages (gets two massages a week), stretching exercises, water aerobics, ice packs, heat pads, medicine patches, ointments, natural teas, etc. We have tried it all and we are now so desperate that we are traveling to San Diego, California (we live in South Texas) and have scheduled an appointment for stem cell injections with StemGenex. If this can get rid of PAIN and maybe improve other symptoms, it will all be worth it. We know it won't cure PSP but just need some kind of relief from the pain or any PSP related symptoms. I know a couple of you mentioned stem cell injections and the pain relief your loved ones received so I have hope that this will help my husbands leg pain. I welcome any advice from those of you dealing with PAIN along with PSP! Praying for some relief.
PSP is changing our lives every day! I don't know how this could of happen to such an amazing, kind-hearted and loving man or to anyone! It is awful! Trying to stay positive, strong and willing to try clinical trials, etc.