Dear All, this is my favourite picture of my beloved Dad with my daughter when she was little. He passed away on the 21st Nov but we didn’t have the funeral until the 13th Dec so it’s all been such a blur.
His passing was sudden although he has been diagnosed with PSP since 2013, although symptoms were definitely present in 2011. We were supported by wonderful District Nurses at home, for which i’ll Always be grateful as that was his wish. We had just been awarded CHC funding and had a grand total of 2 weeks and 2 days funded before he passed away. After a tense moment at the registrar when registering his death, we got agreement to put the cause of death to be PSP, this was so important to me.
My Dad was my rock, I utterly adored him, but I am very glad for him that he is no longer suffering. He never once complained or asked why me, but I found this whole journey completely heartbreaking. I’m dreading Christmas, but all the family is going to be together supporting Mum. I think i’ll Just about hold it together until we pour the brandy on the Xmas pud and light it, that was always Dad’s job.
This forum has been a life saver, I posted rarely, but read daily and avidly, I learnt more here than talking to any medical professional.
Thank-you to each and every one of you for sharing your lives, knowledge, pain and suffering, it so helps to not feel alone. To those who have lost their loved one in the last few years, keep taking every day at a time. To those still suffering and caring, I send your my heartfelt love, I know what you are going through. Much love to a wonderful community, Nicky x x