My lovely dad was diagnosed with psp 5 years ago, although we are sure he'd had it for a while before his diagnosis. I've watched him decline steadily over that period of time, and also watched the effect it's had on my mom.
My mom was his sole carer for 4 years, until she was diagnosed with lung cancer. During her chemotherapy she realized she could no longer cope, and with great sadness, and a certain amount of guilt, arranged for dad to go into a nursing home.
For the last 14 months dad adapted to his new home, and I think we found it more difficult to get used to than he did.
Sadly, my mom passed away on Sept 13 th, and 26 days later, my dad passed away, after being rushed into hospital with a severe u.t.i. Resulting in urosepsis.
To say I feel numb is an understatement. My whole world has been turned upside down and there seems such an overwhelming mountain of things to do and arrange.
At the moment my heart is filled with sadness, but I take comfort in the knowledge that they are together again, where they have always been.
I haven't spoken very much on here, but I read posts everyday, so I would like to say thank you to you all for your words of wisdom and for the comfort you perhaps didn't even know you were giving.
I wish you all well, psp sufferers and carers alike, and will pop back from time to time to check up on you all