On Thursday 12th September 2013 our father finally decided to end the battle against CBD and PSP. He died at home with his family beside him. Although he had been given a syringe driver in the last few days he died peacefully. Why is dad a winner? Well he never once complained about the condition, the pain and the loss of opportunity. He embraced the challenge and continues to be a hero in our eyes. We will miss him terribly but we take solace that he fought a great battle and was indeed a true winner. My dad Kieran certainly kept teaching us even in his last few days in how to live. I am aware that there are many families who have been in the same situation and there are those who are experiencing the same journey. Make sure you say what you have to say to your love one before they pass. Towards the end in my dad's experience he had to be sedated through the driver. Although he could hear us the communication wasn't two way. I will be thinking of you all who are affected by this condition. Please keep my dad in your prayers. He was indeed a true winner... RIP Dad.
(Pictured above is Dad (in the middle) with two of his close friends heading out for a pint...
Love
TheSon
Written by
Theson
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Hi Theson, So sorry for your loss. Your Dad sounded like a lovely, brave man. He was lucky to have his family around him at the end. My husband is in end stage and we know whats to come. Please have peace and your happy memories. Short1.
My heartfelt condolences to you , your family , and friends of your Dad . What a hero your Dad is ! I believe that he had to have felt just as proud of you as you are of him !
Thank you for the reminder about what's most important and typically put much further down on the list of priorities throughout all of the daily trials shared with loved ones afflicted with such devastating illnesses : Expressing our love and happiness for their existence in our lives; past, present, and future makes a world of difference for them and for us.
Thank you also for sending along the great picture of your Dad with his friends and for sharing a tribute to your inspirational Dad with all of us.
I think that anyone who has PSP is very brave. As a caregiver who isn't too brave I marvel at how my wife is coping with PSP. Perhaps it's the finality of knowing there is no cure. I'm not sure. I'm sure my bravery will be tested in the days ahead but I've chosen to live one day at a time and not get wrapped up in what lies ahead. Good advice to say what is in your heart to your loved one while they can still understand. Sorry for your loss. He deserves a metal and so do you and the family.
So sorry to hear about the sad loss of your father. My prayers and thoughts are with you and your family at this time. Your words of advice are so true. PSP is such a horrible condition, I am watching it grab every aspect of my husband and he too seems to cope with his continuing deterioration with such bravery.
My deepest condolences on your loss. I hope you got to tell him how much you loved him and how proud you are of him. I hope you have friends and family to support and comfort you and I hope you find memories of happier times a solace in the days to come. Lovely picture of Dad!!
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