Michael was transferred back to the nursing home today. I was not able to transfer him to another facility to date. I am hoping to talk to a facility on Mon. ( the person was on vacation Thurs thru Mon) and hope they can take him. In meantime, I spoke with supervisor of nursing at the current facility. She assured me he would be turned every 2 hours as well as changed. She agreed to do everything I asked for. I just want him to get thru the weekend unharmed.
His status is not good. He rebounded for 3 days on fluids but today after fluids stopped, he rapidly went downhill to the point of staying asleep.
Hospice came in to speak with me. Told me he is approved determined by his records and looking at him. That was tough to hear. I'm afraid he is almost there. I expected he might get 2 weeks before again being dehydrated but he has begun to not want to eat or drink already. His nurse believes this is a patch of rapid progression of the disease. So afraid this is the beginning of the end. I'm not ready but don't want him to suffer. I'm so exhausted.
Thanks for listening.
Liz
PS...needs much encouragement to chew and swallow. Just don't know.