I don’t want to go on about this stuff but after Colin telling me he thins it helps and not really knowing what it’s doing to him, today I tried CBD OIL myself, WOW I felt so relaxed, this is my new bedtime treat after a long and crap day.
Love and hugs
Helen xxx
Hi Helen
I have had some on my desk for a week or so waiting for me to get over the flu to try it before of offering it to Liz.
Well I keep forgetting its there as well!
Thanks for the encouragement. I will try it this evening.
If I can remember 
Ugh! my memory 
Hugs to you
Kevin
xx
Hi there Helen ! So glad that it seems to be helping Colin's situation ! That's pretty amazing that you took a chance in the interests of Science and well being and used yourself as an experimental subject !! 😊 Very happy to hear that you felt positive results also !!! I will definitely bring CBD oil up with my sister's neurologist at our upcoming appointment ! Thank you very much ! Hope that you and Colin had a peaceful and sunny Easter ! 🐣🕊
Not sunny but at least there was no rain. Never thought of it like that “interest of science” and all that, go me!
Let us know what your Neurologist says please
Love and hugs xxx
Hi Helen
I did it!
I took some CBD oil a couple of hours ago.
I climbed into a small cage and gave my self a dose.
I gave myself two shots in error. Ugh!
The taste was fairly neutral.
Within 20 minutes I got a sense of my muscles relaxing and suddenly realised just how stressed I had been and as my body relaxed I felt myself following suit.
No sense at all of being 'drugged' or sedated. No loss of co-ordination or of concentration.
Quite remarkable.
Now, all I have to do is to work out how to use this exercise wheel!
Hugs
Kevin
xx
PS - I will offer it to Liz tomorrow - It feels safe to use.
Awesome it could be a feeling I could get addicted to, enjoy your evening of relaxation xx
Ha ha! You lab rats have all the fun
Is there any other specification, eg %strength or ml or..?
6mg twice a day.
But getting the right sort is important.
Not Hemp extract. That is a fudge with low CBD content.
Can you find the post I wrote a couple of weeks back?
I went into detail.
Its really very mild and seems to work more on the body than the mind.
Feels very safe.
Waiving
Kevin
xx
Hi kev. Where do you get it from and how much is it,? Jo x
Hi Jo
Just scroll down a few posts... See my reply there.
There are links and everything.
If you want my reasoning - I posted a long post on the why's and wherefores a few weeks back.
The suppliers in the post below are best value - best stuff. There is a lot of stuff out there which looks good, but is rubbish. Holland and Barratt and Cannol are good examples.
I hope this helps.
I find it very gentle and very effective.
Come back to me if you want any more info.
Best to you
Kevin
Thanks kevin jo x
Good stuff xx
HiHelen whete do you get it from and how much is it? Jo x
Out of interest ...For science research he he...Are you both using the same oil or different brands?
I’m using HEMPURA CBD OIL.
Kevin?
Xx
Hi
Yes the Hempura looks really good. I will probably try that next time.
It was a coin toss, but this time I went with Provacan.
I am going to offer a dose to Liz this afternoon.
xx
Kevin did you get drops or spray, I’m thinking maybe spray would be for Colin, as with drops hard to see how many drops I’m giving him.
Helen xxx
We rely on CBD oil. My husband would be lost without it, a shaking wreck.
Hi Trillo
What dose do you give him and which make please.
How does it affect him
Love and hugs
Helen xxx
Cannol. I ordered from a chemist in Lanzarote, a lot cheaper including postage. Not sure what strength at moment as im away for a little break and don't have it. You can look at this on Amazon, it's slightly more expensive.
Hi Trillo
Please check my reply to Sarah below - Cannol is low in CBD and very expensive 
Hope you don't mind me saying...
Kevin
XXX
Hi Kevin, interesting. What do you think if the 1 that Holland and Barrett sell. . €6.50 a bottle for Cannol. How much and where do you get yours from?
Hi Trillo
I searched the internet for a long time. These two seem to be 'best quality' and they tick all of the boxes.
I am using
ciitech.shop/collections/pr...
And Helen is using this brand.
hempura.co.uk/shop/cbdoil/h...
Both are good.
Just a comment on the Hempura uses drops under the tongue and Provacan has a spray that delivers the correct dose. 1 spray = one dose.
The Hempura works out the same price'ish as provocan as they are recommending a dose of double that of Provocan. So each delivers some 80 doses at the recommended 6.0 mg twice daily.
Hempura have a good article on "how much to take." However they are not looking at Parkinson's particularly which is where I found the 6.0 mg dose (in a number of articles).
Kevin
xx
Thanks for the links Kevin.
How did it go with Liz?
Hi Nanny857
Liz thinks its great.
She finds it difficult to communicate, as you know.
However she was able to say that she feels much better in herself physically and mentally. She was also able to say that it didn't alter her mind, or make her feel sedated.
My observations were that she looked much more relaxed (less stressed) and if anything she was more able to use her arms and legs than usual. The next day she was brighter than I have seen her for a very long time. However that might be a fluctuation. I will only know if it persists.
Promising !!!
xxx
Yes!
Liz was actually talking to me yesterday.
Very difficult to understand though, but I did manage to lip read the, "I love you." This last month she has had a very passive PSP face.
xxx
I used CBD oil in the early stages with Mum, her speech and balance was amazing. I got mine from CBD brothers on line at 30% strength. CBD is an extract of cannabis with all the health benefits the THC which causes the paranoia and highs is not present so totally safe to use.
Definatley worth a try. Expensive but worth it. Good luck all xx
Hi Sarah
I hope you don't mind me saying:
This might not be a good buy.
It's made from the whole plant. The oils in the stems are low in CBD.
Secondly they have used seeds. There is no CBD oil in the seeds.
It appears to be a hybrid of Hemp oil (No CBD at all) and the leaves and flowers - which are the parts we want.
They are fairly up front about this - "30% CBD = 150mg CBD..." - Per bottle.
Compare:
ciitech.shop/collections/pr...
500mg Canabinol per bottle and considerably cheaper.
JFYI
Best
Kevin
xx
Hi Helen, can I ask you where you got your CBD from please, I'm in the UK and can't find it on Amazon x
Good to know Helen . Where do you get it from and how much is it,? Jo x
Hi cameoboy11
If you read the posts above Kevin has put links into one of his posts
Love and hugs xx
Hi Helen, will definitely be asking GP if I can get this for W. I might even take some myself, seeing it gave Kevin some relaxing moments. I could do with some right now. xx
Hi Nanny857
Sadly it is not approved for prescription for PSP/CBD in the UK. Its very strictly controlled in terms of its use within the NHS.
You might get lucky.
Our Neurologist was very nice hen we asked. His explanation for his 'no' was that there is no research done on PSP and Cannabinol so he has no clinical basis which would allow him to prescribe it.
Good luck
Kevin
xx
I mentioned about the CBd oil to Admiral Nurse and she advised I check with the neurologist before I start Mum on it incase any effects on meds she is on for epilepsy.
Yes that's wise.
Our neurologist said he couldn't recommend it, but then he mused aloud to himself that in our situation he thought he might try it. He said formally that he couldn't recommend anything that hat no formal clinical evidence.
Epilepsy meds. are something else.
Good luck.
Mum wants to give it a try so I'm going to order it and leave message with Parkinson's nurse to ask Neurologist and let me know. Do you find the taste horrible at all? Hope Liz continues to get benefit from it.
Hi
HEMPURA the one Colin has has got a taste but it’s not bad, I think the one Kevin is using has something to make it taste nice.
Good luck
Helen xxx
I'm thinking the spray will be easier for me to give to Mum so going to try that one first. How is Colin finding it?
I don't mind the taste - Liz does and washes it down with juice.
Again today Liz moved from stressed to relaxed and comfortable. She is more able to move her hands and arms and smiled a bit too. There is quite a bit of her old self coming through too.
Best of luck
That's fab. Mums taste has definitely changed also and she finds alot of things horrible now when eating or drinking. I'm going to take it myself also!
Colin finds it relaxing, but not sure if the results are as positive as Kevin’s Liz, sounds like it’s doing lots of good for her.
I might send for the spray one just in case there is a difference and better, might be worth a try.
Love and hugs
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