Today Colon asked me when:if he was going to get better, so I have had to explain everything to him, he is so sad and upset.
Up until now he has asked a few things which I have answered, but has never shown any interest in what is wrong with him, he said he sort of put things to the back of his mind. Even when he was first diagnosed he never asked questions, I always assumed he knew, but didn’t want to talk about it, his way of coping.
There have been a few times when we have talked about things but he just seems to almost forget it, but this time he hasn’t.
It’s so sad all I can do is reassure him that all will be ok, I’m lost on what to say to try to give him comfort and not to feel sad and worried.
Feels like we are quite a way down the line as he can’t walk, his speech is going, his whole body seems to be getting more rigid,he lays in bed most of the day, just feel so sorry for him to suddenly realise he’s going to die.
Thanks for listening
Love and hugs