I haven't been on here for a very long time but I promise I haven't forgotten you all, I just haven't been able to to post anything.
It's now just over a year since my brother was diagnosed with PSP - he also has frontotemporal dementia - such a short distance from walking boots to walking stick, from holidays to respite care.
He needs 24 hour care and support now - largely due to the dementia - in the process of adding night duties to the care already in place until such time as ....what?
I miss him so much.
Sending love to you all with PSP and CBD and your loved ones xxxxx