Just had a really bad couple of weeks, George has been so aggressive, agitated, it is like there has been a completely different person living here. I have felt so tired over the last couple of weeks, he has fallen over quite a few times, need eyes in the back of my head, no time to think of anything for me, had one hour sleep one Wednesday night, Thursday was such a bad day, the worse day for as long as I can remember.
This PSP journey has gotten so difficult, my patients has been tested so much on this journey, I think it has made me a better person, I have had to fight all the way, for George, it has been difficult, because I was never like that, always the person that would be there for everyone, never asked for anything in return, but I have to fight George's corner, from the blog we all have to do the same for our loved ones.
So much sadness in our lives, George wants to go back to Cyprus to visit family, but it is impossible, when I see that longing in his eyes, it breaks my heart, he wants to be buried in Cyprus, in his village next to his mum. Just feel sad that he is going to be so far away from us, just being silly, just feeling sad, let down with life.
On Thursday in the car by myself, I could not stop crying thinking about how hard we worked, our dreams, that can never come true, all the lost time because of bloody PSP.
Feel a loss for my children and grandchildren, George gets agitated when the little ones are playing. Th older ones looking at there grandad when he is coughing and choking, PSP had taken so much, feel like I have aged over the last 4 years, PSP has taken so much away from us all, especially George who is living with this horrible illness. Sorry feeling so sad. Yvonne xxxxx