Sadly my darling Mum lost her long brave battle with PSP on 29 December 2011. She was discharged from hospital after 9 weeks just before Christmas and had to go into a nursing home. It was our wish that she went into the hospice but we were denied that as someone at the hospital decided she had longer than 2 weeks to live (she didn't in the end). We had the worst possible experience and outcome as we were not with Mum when she passed away and I will never come to terms with that. I simply got a call one evening out of the blue to tell me that my lovely Mum had passed away 15 minutes previously. I never expected Mum's passing to be dealt with so badly and for us, her family, to be treated in the cavalier, disrespectful, non-compassionate manner that we were by the staff who were on duty that night in the nursing home. The whole situation is now the matter of an inquiry at the nursing home where Mum ended up. She actually would have had better treatment had she stayed in the hospital (which is really saying something as this particular hospital is always in the news for all the wrong reasons).
My sister, brother and myself and our families are devastated at the way PSP robbed our beautiful, intelligent, independent, vibrant, kind, lovely Mum of everything. We did all we could for Mum and the only positive thing I can say at the moment is that she is no longer suffering. We cannot stop crying and I don't think the pain will ever go away. She was so special, we loved her so much and she did not deserve for any of this to happen.
May you rest in peace my darling Mum. We love you and miss you more than words can say. Thank you for living your good life - you were the best Mum in the world and a wonderful example to us all, we will make you proud of us
Mum's funeral is on Monday 16 January 2012 and we will be collecting donations in Mum's memory for the PSP Association.