My darling hubby has slipped off the plateau he has been on for months and has changed so much in the last few days. His eyes have hardly opened since Friday. His position in the bed didn't change at all in the night and he woke up drenched in sweat. When we hoisted him up using the standing hoist, his legs buckled and although he still had a bit of strength in them, he was almost hanging. When we got him on his shower commode, he slumped forward almost in the foetal position. There were no thumbs up or down in response to questions. He had a shower, dressed and went in his chair. Despite this, he managed a full mug of tea, banana and ready brek for breakfast and a full corner yoghurt with his medication, without any coughing or choking. I've just put him back to bed to get him off his sore bottom and had one of those, I can't do this any more moments. It was so difficult hoisting him onto the bed with legs buckling and then lifting his legs up onto the bed. They were so rigid and it was almost as if he was fighting against me, but he wasn't, just stiff. He is now asleep, bottom exposed to the air with a sheet over him. I phoned the neuro-rehap team to see about getting a different hoist. I said could I speak to one of the four OTs we have seen before and was told none of them were there any more.
Our Crossroads sitter rang this morning to say she wasn't well. I thought she could help me get him out of bed.
I've no chocolate in the house and it's not Friday so will not drink. The 3rd load of washing is in the machine so I'm going to down tools, tell God I need His help and watch last week's Holby, gathering strength for the "get up".