Another Newbie

[Zeberdee]

Have monitored the site for some while and have found a wealth of information. Hubby was diagnosed with PSP in 2013 and now in advanced stages in this unwelcome illness. CHC has declined funding and naturally its appeal time. Therefore I would be grateful to receive advice from those of you who have any experience in this process.

[Hidden]

Welcome to a group no one wants to belong to. You will find a wealth of information or just to let you know it ok to rant,scream or just cry.

Take care of yourself

Dee in BC

[Zeberdee in reply to Hidden]

Thankyou have days when tears are non stop. Today being one when my lovely hubby is totally non-communicative. I ask what is going on in his head. I cannot bear this dreadful illness. J

[Hidden in reply to Zeberdee]

I truly do understand, my husband is 64 ,we have been togther for 37 years and was my best friend ,we did everything together. Now I'm a caregiver to for the most part to a stranger .I miss him.can't say it's going to get better ,it's only going to worse.

Hang in,take your me time when ever you can grab it.

Wine a clock here and they are all in bed ( hubby and dogs)

Dee in BC.

[doglington in reply to Zeberdee]

yes. its the worst bit, isn't it ?

sometimes i'm doing all right, tending to him, and then i remember him as he was and can't bear it. but have to.

love from jean xx

[Zeberdee in reply to doglington]

Gets difficult remembering the good times as PSP takes over and it's in total control. Jxx

[doglington in reply to Zeberdee]

so true.

xx

[Baytalon]

I am not where you are yet, but I see the progress and I fear what is to come. One year ago, I started noticing changes in my husband. I feared he might be in the early stages of Alzheimer's. When I finally got him to a neurologist in November 2016, he was diagnosed with PSP. We are still early on. I don't know how fast the downhill slide will come, but I know it is coming and my heart breaks.