Your loved one is in hospital. They are living at home and there is no carer support in place.
Or, they are in hospital and look likely to need to go into Nursing Home care.
Tell the nursing staff that you are not coping with the care or its unsafe, or both and that you need help. Then ask them to arrange a referral for Fast Track Continuing Healthcare.
They have to offer you an assessment. As we all know there are issues with patients ready for discharge, but who do not have something in place for that to be safe. Then a needed bed is 'blocked'. For this reason the CCG responds very quickly to requests for these assessments.
Find out when the assessment is going to take place and make sure you are there armed with notes about all of the things they need doing both clinically and in terms of everyday care. Its much better to have notes as its often hard not to forget things. I type mine up and hand them a copy. They are always pleased to have it on a plate so to speak.
The lovely PSP Association have done a brilliant job on producing a set of notes to assist professionals assessing PSP/CBD for CHC. I have another review coming up and I will be handing the reviewer a copy of that too. I was quite surprise at how many symptoms I have got used to and missed off my list.
Here it is:
One up from the bottom on the list.
All the best